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MCADD

My son was recently diagnosed with MCADD and I am wondering if anyone else is dealing with this condition.  We are working with a geneticist to ensure he receives proper treatment, but I'd love to hear from people who've dealt with it from a parents' perspective.  Thanks.

Re: MCADD

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    I don't think anyone on this board as a DC with a metabolic syndrome. My DD may have one (or so we originally thought). 

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    My son is 8 weeks old and was diagnosed with MCAD at brith!!!!! If i can help you in anyway shape or form, please let me know..... there's lots of scary info out there.....

    we have met with specialists here in houston, and i feel greatly reassured about his diagnosis and our ability to treat it.

    let me know if i can help. If i don't check back ( sometimes i forget), you can find me on the houston nest board.....

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