Today we took Jack for his 6 month shots (a little late because of his latest surgery) and then to the neuro for a surgical follow up.
We told the neuro that Jack was a little fussy because he just got shots and she said, "You know what is really bad? I've never been able to watch my babies get shots. It just kills me. I literally have to leave the room. I mean, it's so different when it's your own baby, you know?"
I just stared at her. How the H*LL do you think I felt when I handed over my 10 week old for you to cut open his skull and operate on his brain? And AGAIN at 6 months old to put a device in his skull because the first surgery didn't work? You cut a HOLE in my kid's head, and you're freaking about your baby getting shots?????? Boo FREAKING hoo. My baby's been through a h*ll of a lot more than shots.
Does that seem insensitive to anyone else? Maybe I'm overreacting.
Re: Miffed at DS's neurologist
Not overreacting AT ALL!! That is insane!
You are a saint to not say something to her. I would have starting crying, but I'm a big baby....
We also have a neurologist and her bedside manner is lacking so I know how you feel. That said, she obviously wasn't thinking before she spoke. I also think that when she operates on his brain, she feels in control and assured of her expertise; whereas when someone else is doing something as small as taking blood or giving shots, its hard for her to watch.
Does that make sense at all? I think it has to do with what is in one's own control and what's not... sorry you are having to go through with DS. May I ask what medical issues he has? Our DS has epilepsy and is blind...
I think it's natural that you're sensitive about your experience. You've absolutely been through a lot.
She probably had a bit of a brain fart and/or she feels so comfortable around you that she shared it without really thinking about where you've been and what you've been through. And yes, she forgot her tact at that moment.
I'd try to let it go.
Also, she's a neurologist, not a neurosurgeon, right? So was she the one doing the actual cutting? Or did she tell a surgeon what needed to be done and they agreed and did it?
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To clarify- she is a neurosurgeon, and she did do both operations on my ds.
Also, lpennie- my ds was born with an arachnoid cyst on his brain, between the hemispheres. They found it on ultrasound when I was 32 weeks pregnant (I was hospitalized for 11 weeks of my pregnancy due to dilation and effacement at 24 weeks) and we were told that probably a large portion of the population has those type of cysts and don't know it. However, his cyst tripled in size and caused ventriculomegaly and borderline hydrocephalus, so he had a VP shunt placed 2 weeks ago.
Oh wow! Did they say this will have lasting effects on his brain or his development? How long will the shunt have to be in?
I know how hard it is to watch as your LO gets poked/prodded/cut. My son's right hemisphere is smaller than the left due to an in utero stroke he had and so he will more than likely have many developmental lags.
hugs :-)
Bless your heart! I will keep your LO in my thoughts and prayers.
Jack will be shunt dependent for life. Hopefully we caught it early enough that it hadn't done any lasting damage to his brain but there is no real way to tell. He will be starting physical therapy soon, so hopefully that will help.
Ah ok....yeah I'll call that a lapse of judgment then! But maybe she only let it slip because she's so comfortable around you? I'm glad it sounds like things are going ok. He's too cute.