Literally could just fall asleep at my desk. — The Bump
Special Needs

Literally could just fall asleep at my desk.

Being a working mom of a special needs child is just completely exhausting. I could literally fall asleep at my desk right now. I don't do coffee, Coke is my main source of caffeine. Not working to well. I wish I could take a lunch and take a nap, but I spent two hours with ds this morning running him to ST, so that pretty much cuts out my lunch break. No time to take off from work as I have to save what little I have left for ds appointments.

We have just begun our first round of appeals with the insurance company regarding our ST claims. I have spent hours with them on the phone, because not only are they giving us fits about ST, but now they claim they never received the three other ABA claims I sent by fax on three different occasions, which I have a confirmation messages from all of them. Bunch of BS in my opinion. So, I had to resend those and got a phone call back saying that they did get them. Watch, I will call them in a few days and they will say they didn't get them. Dealing with them is exhausting in itself.

We are also trying the medicaid route, still awaiting a decision of acceptance on that. Still have a few months before we hear anything on that. And what completely stinks is that we live in one state right accross the river/state line from a big city, where all of our ds services are coming from. There is crap available in our state, and I have a feeling that medicaid will give us problems with paying for services in another state. Another battle we may have to face as well.

I wish medicaid/insurance would be a little easier on us parents of ASD, I mean just raising a child with ASD in itself is challenging, why make it that much more difficult for us. 

I really need to be a sahm, I have a friend who is a mom to one sn child and two typical children and she told me this is the reason she quit her job and stayed home. But, for now, until we can get somebody to pay for this therapy, I have to work.  

I feel like I am stuck between a rock and a hard place and about to fall asleep there.

Re: Literally could just fall asleep at my desk.

  • I am a SAHM and have one little one with ASD and another that isn't talking at 16months that I'm now going through all of the evaluations for.  Some days I want to go back to work because it is so hard.  I always feel guilt if I'm not "working" with them every second of the day.  I sort of wish I had to work so I could legitimately walk away from it for a few hours - not that you ever really do in your head.  I think the reality of the situation is that its overwhelming no matter what you do.  I wish we all got nap time - that might help :) 
  • image skittles_123:

    Being a working mom of a special needs child is just completely exhausting. I could literally fall asleep at my desk right now. I don't do coffee, Coke is my main source of caffeine. Not working to well. I wish I could take a lunch and take a nap, but I spent two hours with ds this morning running him to ST, so that pretty much cuts out my lunch break. No time to take off from work as I have to save what little I have left for ds appointments.

    We have just begun our first round of appeals with the insurance company regarding our ST claims. I have spent hours with them on the phone, because not only are they giving us fits about ST, but now they claim they never received the three other ABA claims I sent by fax on three different occasions, which I have a confirmation messages from all of them. Bunch of BS in my opinion. So, I had to resend those and got a phone call back saying that they did get them. Watch, I will call them in a few days and they will say they didn't get them. Dealing with them is exhausting in itself.

    We are also trying the medicaid route, still awaiting a decision of acceptance on that. Still have a few months before we hear anything on that. And what completely stinks is that we live in one state right accross the river/state line from a big city, where all of our ds services are coming from. There is crap available in our state, and I have a feeling that medicaid will give us problems with paying for services in another state. Another battle we may have to face as well.

    I wish medicaid/insurance would be a little easier on us parents of ASD, I mean just raising a child with ASD in itself is challenging, why make it that much more difficult for us. 

    I really need to be a sahm, I have a friend who is a mom to one sn child and two typical children and she told me this is the reason she quit her job and stayed home. But, for now, until we can get somebody to pay for this therapy, I have to work.  

    I feel like I am stuck between a rock and a hard place and about to fall asleep there.

     Have you been keeping track of what the people's names are that you talk to, like the one who told you they did receive them? I'm not trying to offend you, as you probably are already doing this. I just thought if you aren't doing this, it may make it easier to prove that you talked to someone already. Sorry I'm not much help.

    Blake 04/29/05 Will 06/12/07 Baby Birthday Ticker Ticker
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  • Yes I am, thank goodness!
  • I'm with you skittles. I know what you mean about appts. taking all of your time and lunch breaks.  Plus its hard to focus and get things done when you are at work too!!!  Generally I still get calls about appts. and insurance there too.  (because lord knows you can't reach anyone after 4 p.m. on a weekday at an insurance group) 

     I dream of staying home too, but then I get my student loan bill each month.  It would be so nice to be with him more. 

    Its hard - I think it does help my mind to work though and to not be so focused on my ds's issues.  I am so feeling a nap and all I've got left today is a diet sierra mist which isn't helping.  I'm sorry it sucks, but I'm right there with you!!! 

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  • As a SAHM, I often ask how I could do all these appointments/PT/OT/Feeding while working.  In any case, I would have definitely left the job I was at because they just wouldn't have been understanding.  I can't imagine how much of your day is focused on making calls and keeping track of your LO's at work!  It's time consuming enough when you're at home with them full time.
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  • I am extremely lucky to have such flexible boss who is completely understanding. Summer time is a lot slower for us, as I work on a college campus, so it has been a little easier in that respect.  . .come Fall I may be pulling my hair out, but hopefully we will have a more normalized schedule of therapies by then. .
  • I so feel your pain. I too am a full time working mom with a special needs child. He has a genetic disorder and many congenital anomalies. Currently he sees 9 different specialists on a fairly regular basis, in addition to PT and OT, plus he is starting EI therapy at home next week. I work 5 days a week, but my schedule includes one evening shift and I have every other Friday off, so I try to schedule as many of his appointments for those days as I can. That means that I hardly have any fun time with my son, because whenever I am off, I feel like I am carting him to one of his many many appointments. It's so hard to concentrate at work some time, because I am always thinking about him. (I should be working right now, actually, but my brain is sore.) I too wish I could SAH, but I am the family's insurance, and as of now DS has rung up a bill of over $700,000 so far in just his 9 and a half short months of life. I don't have a choice. 
  • Bless you McBonBon. What a fantastic mom you are. And the picture of your ds is just precious, he is a cutie! 

    It is nice to hear that I am not the only one going through this.

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