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amajane
member
Comment from opthamologist
amajane
member
We had a consult with an opthamologist yesterday to have Marley's coloboma checked out and to discuss her mild crossed eyes. He did a very thorough eval and was very interested in whatever syndrome she might have which includes all the things she has going on (which appears as a lot).
When I asked about treating her crossed eyes he was like "well in a typical child, we would want to do surgery or prescribe glasses and treat before they are 2 years old, but in your situation Marley is so complicated that I don't want to do anything right now".
Huh? ?
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Re: Comment from opthamologist
BFP 3/9/12 Natural M/C 4/11/12
the only thing I could guess is that with various options, he's not sure of the best course of action given all of Marley's unknowns? I'd have asked for clarification... at any rate, I think a 2nd opinion would be a good idea.
Good luck!
We've been to two different pediatric opthamologists so far -and I'll be honest, the second one told us something quite similar.
We have some eye crossing too, more prominent on the left side, but both whenever But what he said was that in normal kids that they would expect they would uncross by like a year or 2. But in Isaac with his low muscle tone and condition, his can keep getting better, so they just need to monitor him every couple of months, and then glasses later on down the line, and then possible surgery even farther down the line. So maybe he thinks depending on marley's diagnosis, that she'll just improve with time and monitoring and you might not even need to worry about surgery?
Thanks ladies. Really, I don't know think he knows what to make of Marley. Her syndrome is unknown and I think he's more interested in figuring that out what he is (and lost more testing) than approach her with a treatment in mind.
But with many of the doctors we've seen, I could say the same thing. She's like a science experiment rather than a human being that needs treatment.?
That is totally worth a phone call to clarify. I've followed up appointments in the past with "When I went to explain this to somebody, I realized I didn't understand X".
It does the doctor a favor by reminding them this stuff is not self-explanatory to everyone. If he was being insensitive you can draw his attention to it with some choice words, and if it was based on some medical thing he can explain it to you (I'm also rooting for the it-may-resolve-itself possible explanation).
Good luck getting some answers!