High-Risk Pregnancy

Bicornuate uterus ...

I have been posting on the GP board, but someone suggested I post my question here.  My doctor has just informed me that I may have 2 uteruses.  I have to go in for HSG to determine if I do.  Anyone here have experience with this and successful at getting pregnant??  I have never before heard of this and feel a little confused.  Thanks!

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Re: Bicornuate uterus ...

  • I don't know a lot about them but my friend has one (it's not two uteruses...it's heart shaped but not completely in half). She got pg and they felt the implementation was in a good place so she was ok. She told me some people go for IVF so that they can place the egg in an ideal place.
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  • I just found out last year that I actually have uterine didelphys, which means that I have two complete uteruses, two cervixes, and a vaginal septum.  My doctor told me that it might take me a little longer to get pregnant and I probably won't be able to carry a baby for a full forty weeks, but otherwise there shouldn't be any long term problems.  Good luck!!
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  • I'm just a lurker on here, but I have a bicornuate (I've actually been trying to keep an eye out for others, that's why I've been lurking here).  There are a few different types and levels of severity, so the HSG should make things a little clearer for you.  Mine was discovered by CT scan.  Then I had an HSG, but the radiologist performing it was clueless and we got no good pictures.  I had an MRI after that showing a definite heart shape.  But, there are 2 possibilities - a septum, which is just fibrous tissue splitting the uterus that can be removed, or a very thick wall that's a continuation of the outer wall that most doctors will not touch.  We couldn't tell on the MRI, so I went in for a laproscope so my doctor could see it for himself.  If it was a septum, he was going to cut it out while he was in there.  Mine is the thick wall and is very severe.  It splits my uterus almost all the way down to the cervix, completely closing off one side and leaving the other side barely open enough for a scope.  I pretty much have 2 completely separate uteruses.  We have been TTC for 17 months with no luck, but there may also be some male infertility issues - we're not sure yet.  My doctor really wants me to do IVF, one embryo would be implanted at a time to ensure plenty of room for growth, but we don't really think that's what we want to do.  For now, we are pursuing adoption.  I'm sorry my story is probably not what you were hoping for, but each case is different.  There is an excellent group on BabyFit just for people with uterine anomilies.  It's named bicornuate uterus and the girls there are awesome.  Lots of good info and support.

    Wow, this really turned into a book - sorry!  Just don't google it, there's lots of bad news out there that isn't necessarily true.  You can get pregnant and even have multiple successful pregnancies.  Most people don't even know they have it!

  • Thank you so much for all of your help!  :)  The day he told me I may have it ... I had never heard of it ... and I felt so confused.  I feel better now knowing there are other women in the same situation.  Hopefully I will have the HSG soon and find out whats going on.  At what point did your DH have a SA?  So far my doctor hasn't said anything about doing that.  I was just thinking doesn't it make sense to have him checked at the same time as I am?  On top of possibly having the bicornuate uterus, I have really irregular periods, last one was in October.  Anyone else experience this as part of having a bicornuate uterus?  If so what did the doctor do?  Thank you all again! :)
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  • You're welcome :)  It always helps to know you aren't the only one!

    My periods have typically been very regular, but they started me on BCP because of painful cramping - probably from the endometriosis my doctor found when he went in for the laproscopy.  Lately, though, they've been all over the place.  Last cycle was a week early, this one over a week late.  Not sure what's going on there.  The doctor's office just says wait a little longer and they can give me something to get it started, which I  assume to be BCP.

    My doctor ordered the SA after we had been TTC for a year - around the same time I had the lap.  From what I understand, they don't usually test him until you have been trying without success.  We did it twice and both came back as insufficient volume, but I don't really know what that means.  After we found out the severity of my bicornuate, we just kind of left it alone, but I wonder about it sometimes.  I think the nurse said if the second one came back the same they would give him a referral for a urologist.  I just figured there was no point in putting him through any more if we weren't going to do anything with it.

  • Hi!  I have a unicornuate uterus - which is basically just half a uterus.  And a 3 week old daughter... so please know there IS hope when you have a uterine anomaly!

     

    I'd suggest joining the Mullerian Anomaly yahoo group for lots of info on bicornuate, uterine didelphys, etc.  They are a great group of women with TONS of info, a medical expert, etc.

     https://health.groups.yahoo.com/group/MullerianAnomalies/

     Here is a link to a blog with info, too

    https://mulleriananomalies.blogspot.com/

     

    Good luck!

  • My suggestion to anyone with such issues is to start banking your own blood prior to getting pregnant or have friends/family donate for you. I have cared for several patients with varying degrees of bicornuate uteri and you are at high risk for hemorrahaging. Don't let this freak you out; just know it is a risk. The blood we use from public donation is perfectly safe, but your own blood is an extra piece of mind. Ask your hospital's blood bank for their procedure on this.?
  • Interesting... I'm glad you posted that - I've never been told that before.  Thanks!
  • :::raises hand::: I was diagnosed with bicornuate uterus prior to getting pregnant and I am currently pregnant with #2 (stick baby stick). No problem getting  knocked up. I did have preterm labor which is common since often your uterus cannot expand as normal if there is a septum at all, anyways my ptlabor was stopped and I delivered a healthy baby at 39 weeks.

    Take it from me, No matter what the doctors say, never let them take your hope away!

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  • I mostly lurk here, but I'm pregnat with complete uterine didelphys (same as lizziebee).  It did take us a little longer to get pregnant than some, but no length of time for any alarm (six cycles).  I did chart too, with complex parts, I wanted to know what they were up to (for me this was helpful).  This varies from case to case for people. 

    I've been watched throughout by a MFM doctor first for cervical competence and now we're starting to look for IUGR.  I've been seen every week since 12 weeks and my OB plans to stick with this until I deliver, due to pre-term labor issues that I've had.  Also I've been on modified bedrest since 14 weeks due to fluctuating cervical lengths.  I have had issues with my placenta as well, only half of it recieves blood flow and the other half is positioned on the wall between my two uteruses that recieves no blood flow.  This is how it's been since implantation, though it doesn't seemed to have slowed my little one down at all.  All in all, my body has been able to accommodate him as best it can and he's growing beautifully. 

    The MFM and OB both still feel like I will not carry to term, they think my uterus is just to small.  The goal is currently 32 weeks, then 34 weeks, then they agree they will be "comfortable" if he is born anytime after this.  If they do confirm this for you, when you are pregnant you will be closely watched by doctors.  It has been more difficult than a "normal" pregnancy with all of the added appointments, bedrest, time in and out of work, and worry, but he is worth every second of it.  Good luck to you. 

  • Thank you to all of you and your stories!  It really helps hearing about all of your situations.  The nurse called yesterday and said the HSG was approved by insurance and they will call in 2 days to tell me what day they will do it.  I'm a little anxious, but more ready to find out whats going on with me. 
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