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30 yo and fibromyalgia, jeez.

RoRed5RoRed5
in Babies: 9 - 12 Months

I feel so bad for my cousin.  She's been through way more in her lifetime than she deserves and she just got diagnosed with Fibromyalgia.  On the one hand it's horrible because it's something that will never go away.  On the other it's almost a relief to get a diagnosis so she can start treatment(she's been to 5 drs in 2 years, lost 40 lbs that she didn't need to and has many days that she can barely get out of bed to take care of her 3 kids).  I'm just hoping that the migraines, exhaustion, IBS and other symptoms can be treated.

On the flip side I now love my Dr even more than ever.  I told her to go see him and he diagnosed her in 2 days.  He was the first Dr to not completely blow her off (one even told her to take OTC allergy meds for 10 days - um yeah, she taked Rx allergy meds every day) and he's DSs Dr, too.  She's now switching the whole family over to his practice.

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Re: 30 yo and fibromyalgia, jeez.

  • eliotsmuseeliotsmuse

    I feel for her - I was diagnosed with fibro when I was 16. It stinks. My mom has it, too and it is just debilitating some days, though I have recently found something to help me.  When I was about 20 it was so bad that some days I couldn't even wash my own hair because I couldn't lift my arms - that was pure hell.

    Hope she feels some relief soon - it's a frustrating deal. 

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  • RoRed5RoRed5

    eliotsmuse:

    Can I ask, how did you come to be diagnosed at such a relatively young age?  I do feel that my cousin has been showing symptoms for what seems like ever (looking back it's easy to see how the depression, mania from lack of sleep, migraines, the undiagnosed learning disorders, unexplained stomache aches and other pains, etc can all tie in).  I'm surprised, though that your Dr found it. 

    Do you see a specialist for it now?  Also, do you take Cymbalta?  That's what she's been prescribed but I think it'll be out of pocket for her since her insurance says it's preexisting.

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  • UNEOT02UNEOT02

    My sister is 35 now she was diagnosed with Fibromyalgia about 12 years ago.  She too had horrible symptoms and pain, finally she kept a food diary and found that certain foods affect her terribly.  She can't eat foods with tomatoes in them, any citrus, anything with white potatoes (red are OK), no teas, I can't think of them all now, but since staying on a pretty stict diet she has been feeling great for a while now.  I would encourage your cousin to do the same, my sister does not take any medication on daily basis since finding what foods adversely affect her.  HTH!

     

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  • Marie TourvilleMarie Tourville

    I have it too.  I found out about a year ago...maybe 18 months.  I hope she finds a treatment plan that gives her some relief.

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  • RoRed5RoRed5

    UNEOT02,

    Thanks, I know she was told a few months ago that she had a beef and a couple of other allergies because they did a stress test.  I'll tell her what you said, though to see if there are some things affecting her that wouldn't necc. show up in a scratch test.

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  • eliotsmuseeliotsmuse
    imageRoRed5:

    eliotsmuse:

    Can I ask, how did you come to be diagnosed at such a relatively young age?  I do feel that my cousin has been showing symptoms for what seems like ever (looking back it's easy to see how the depression, mania from lack of sleep, migraines, the undiagnosed learning disorders, unexplained stomache aches and other pains, etc can all tie in).  I'm surprised, though that your Dr found it. 

    Do you see a specialist for it now?  Also, do you take Cymbalta?  That's what she's been prescribed but I think it'll be out of pocket for her since her insurance says it's preexisting.

    I was in a bad car accident at the time - my doctor saw me many times after that and determined that that was what I had based on the "trigger points" - I had just about every one of them and still do.  I don't remember what the treatment was at the time (I'm 29 now) but I do know that losing weight helped, as did restricting certain foods as the pp mentioned.  I now take a low dose of Amyrtriptiline (sp) which mostly helps me sleep - and as such, helps my muscles repair during the night like they are supposed to - it's amazing what a good night's sleep will do.  I also suffered from migraines and IBS and depression...you name it.  Luckily, I have had doctors who see it as a real problem - there are still some who don't know about it or think it's "all in your head".  

    At one point I was fortunate enough to do water therapy - it was in a 90 degree pool and it REALLY helped. I went twice per week and it was magical!  I would highly recommend water therapy to anyone suffering with fibromyalgia.

    You can always email me at tymicic at gmail dot com or pass it along to your sister if she wants to talk.  :-) 

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