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Pregnant after 35
JenniferTCU
member
Trying to keep it all together...NT results
JenniferTCU
member
I posted on Friday about not really understanding half of my NT results. Some of you were so sweet to offer advice and words of encouragement. I didn't think I'd get the doc results back until Friday but the genetic counselor called me today. My odds were 1:165 for Down Syndrome and 1:5000 for Trisomy 18. I can't stop crying. Here's the problem....I read too many results on here. I saw so many scans that said people were 1: 1500 etc that I had in my mind mine would be that way. I was crying on the phone with the genetic counselor and she said "what's wrong? those results mean that it's 99.4 percent odds your baby doesn't have down syndrome?" That may be but 1: 165 doesn't sound like great odds at all. I told her I wanted a CVS right away but she told me I was too late for that. This is so frustrating because they're the ones that scheduled the NT test- not me. And I asked the doctor if we should do the test on Friday when I was there and he said, "Let's just wait on the blood results." Oh girls- I can't stop crying. I don't get my next u/s until April 17.
Sorry for the very long, run-on paragraph. I am not thinking all that clearly.
This discussion has been closed.
Re: Trying to keep it all together...NT results
My advice: Either have your doctor do an Amnio (if you trust him) or find a new doctor?and one who does this a LOT, lessening the risk of miscarriage?who will perform an Amnio at 16 weeks.
I see you're 12 weeks now, so that'll be in 4 weeks ? around April 6th. Do not wait for your next ultrasound if you want reassurance.
You're 40 years old? Well your risk of Down's Syndrome is better than the average for your age. But I understand that the risk is still there and that you want to KNOW. An Amnio is the only way for you to be certain at this point. And when performed by a doctor skilled in it, the risk of complications is around 1:300?or less.
Take charge of your pregnancy. If you feel that your doctor isn't listening to you, you may be better off finding one who responds to your concerns and isn't so laid back.
Bronx Zoo: Summer 2013
To read my blog, click on the giraffe pic below!
Hi there-
I just told the genetic counselor to ask the doc tomorrow how soon they could schedule me for an Amnio if it was too late for a CVS. She's going to let me know tomorrow. My thoughts will be with you tomorrow. I definitely want one, too...I just hate the waiting part.
Thank you all for your replies. Everyone is so helpful on this board.
My Blog
Oh honey, i KNOW how scary this is. Listen- my results for this pregnancy came back at 1:44 for Trisomy 18. Talk about HYSTERIA. Then, I did the numbers. That ratio meant that there was a 97% chance that my baby was 100% fine. Pretty damned good when you do it that way, huh? And your odds put you somewhere around what a 99% chance that all is fine? (better than that actually, right?)
I did an amnio and found out that my girl is totally okay, and it put my mind at ease. But I reaaally know the feeling. I cried for nearly 3 days .. just couldn't stop. And I let myself have that! This is scary! But- your odds really aren't bad. I say if you're alright with it- go for the amnio and get your definitive answer. If you do that and want results fast, ask for the FISH test (acronym.. they'll know what it is). It's an early result test that is run along side the full conclusive tests with the amnio.
Hang in there. We're all thinking of you
Christine
Those are great odds. My odds with my last pregnancy were 1 in 5. Now that's something to cry about. (And yes, it was a DS case. We ended the pregnancy.)
I PMd you back! :-)
Hi Jen,
I've been lurking on this board for awhile (I'm normally on 1st Tri) and just wanted to say that I hope everything works out for you. I can only imagine how scared and upset you must be. All of us want to hear noth but the best for our babies so it's only natural to be less than thrilled at less than perfect odds. Because I'll be 35 at the time of delivery, my dr. has already told me I'll get offered an amnio. While I am nervous about it, I know the results are pretty indisputable so maybe that will put your mind at ease. Like Robin said though - find someone who does them alot and has the experience.
I am so sorry that you are having such a hard time. I can only imagine that I would be the same bundle of nerves as you are.......nothing less than a PERFECT result is what you really want!
My NT scan is scheduled for next Monday and I'm starting to really freak out. I hope that you are able to get some answers that make you feel better. Sending you all kinds of hugs and support!
Tyler Anthony arrived on 9.21.09
The Chronicles of Justin and Tyler
I went through the exact same thing with almost the exact same odd...1:150 for downs. I did the amnio about 3 weeks later and it showed that all was fine...but I totally know what you mean, of course you are worried!!!
Just see what the blood tests say and then if you proceed with the amnio, I agree with the other folks on the board, try to find someone with a ton of experience with these procedures.