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Snarky and T-TTC
POCS and Pituitary Tumors??
I was just recently told I have POCS and I am going to the Endroinologist on Monday to confirm if I have a pituitary tumor. The past year has been a roller coaster ride, and not a good one. I have just been told time after time that this is wrong with me, and that is too.
I know that I am not the only one that has had issues getting pregant. But have others gone through what I have? If you have, did you get pregant in the short future after everything was "fixed"? I have friends who have only been married for 2 months and then found out they were expecting. Its just so frustrating and upsetting that my Husband and I really want children and its so hard for us. But others just think about it and they are pregant.
Any advise for a stressed out, upset, going crazy, TTC women who does not know where else to turn??
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Re: POCS and Pituitary Tumors??
Welcome to the club! You aren't alone.
Usually I have more, but I am drinking a big glass of wine right now....
i have a pituitary tumor and have been on medication for it for two years. i actually had an mri today to see where it was at, last time i had an mri it had shrank. mine is not producing prolactin and it's diagnosed as a "non-functioning prolactinoma" meaning it came out of nowhere.
it hasn't affected my hormone levels and in fact my endo thinks that the medication i take of it is keeping me regular and balanced. i've gotten pregnant twice, but had ectopics...totally unrelated to this.
i've known girls with this that have gotten pregnant and my dr has pg patients as well so i'm very hopeful.
the only thing is that when i have a baby i won't be able to breast feed. my dr. would prefer that i not breast feed and get back on the medication soon after delivery b/c breast feeding causes you prolactin levels to rise tremendously and you run the risk of having the tumor increase. i'm fine it, my mom didn't breast feed and we're all okay (i think).
i get my results next week, hoping for some more shrinkage.
let me know if you have any specific questions. i know that when i first found out i freaked, but it's really nothing major. i never had any symptoms, i'm on a low dose of medicine and i have no side effects. i just see my dr every few months for blood tests and i have an mri every year.
good luck!
Thank you all so much for all your advice. I have since gone to my endo, and basically he said that my OB is full of Crap. My prolactin level is 27, and I have been told that the "high" for women is 20. So my was not that elevated. My endo is sure that I have PCOS with the tests, ultrasouonds. He has put me on 500mg of Metformin twice a day.
Now I hopfully well be able to track my cycles. My OB put me on provera for the month of Jan. and I got my period. And then I went on with my life and in the month of Feb. it came @ the same time as last month! I haven't had 2 cycles in 2 months for over 6 months!!! I am very happy. I am exercizing 4x a week, and my endo's office has a dietitation in the office. And I am going to see her in April and then back to see my endo in June. I hope that everything goes well. I am just upset that all my friends all pregant. And most of them have only been married less then 4 months, or have only been trying for a short period of time and it happens for them. I just think that I am never going to get pregant, and that there is something really wrong with me, becuase I can't ger pregant. Like I am not suppost to be happy or have a family. Its just frustraing.
I hope that everythings goes well for all of you, and I hope that i will be able get back on the site and see all of your beautiful babies!