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anyone read this re: domperidone?

lajolla09.30.06lajolla09.30.06
in Multiples

https://pediatrics.about.com/b/2004/06/15/domperidone-fda-warning.htm

 just curious... I've been thinking of trying it (I already pump but have a terrible supply) because they eat so much more these days formula is getting crazy expensive.  What do you think?

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Re: anyone read this re: domperidone?

  • susanbsusanb
    I can't imagine why you'd chance it - have you tried taking 3 fenugreek and 2 blessed thistle 3x a day? It helped my supply immensely. It's not going to kill you and it's something most lactation consultants will recommend. The herbs are not expensive - you can get them in health food stores and on line. They tend to be a bit cheaper on line because you can buy in larger supplies. I used them for almost a year and a half. No side effects and tons of milk. I'd go the natural route before I took a drug that could kill me. Seriously - I'd never take an off label drug with an FDA warning against it.
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  • SNL0605SNL0605

    I've been taking it for about 2 months...take a peek at the date of the article. Its REALLY old, for medical information

    It is considered a class C drug- which doesnt mean it is bad...it means it hasn't been put thru testing....it has been used for YEARS and MANY ladies take it....

    it works wonders! I took fenugreek and BT and to no avail...Domperidone is the only thing that worked

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  • SNL0605SNL0605

    p.s. I am a LC and a RN....and we recommend it all the time....that being said you should NEVER take a medication without your doctor knowing about it...

    as far as not taking meds for an off label use...this simply is so unrealistic....if we were to abide by that we would need to stop a lot of things

    Benedryl was actually intended to be used as an anti-psychotic

    Morphine is the same chemical make up as heroine

    Fenugreek is an herbal as well as BT and NEITHER of those are monitored or tested by the FDA

    Sorry for being so bold about this...but this is something that really gets me going

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  • lajolla09.30.06lajolla09.30.06
    My LC recommended it to me a few months ago, I ordered it and it's been sitting on my counter because I'm nervous about taking it... I was just wondering what you all thought.
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  • teeveegirlteeveegirl
    I tried fenugreek, blessed thistle, you name it and domperidone was the only thing that worked for me.  My husband is in medical research and he wouldn't let me take something that would put me at risk.  The FDA is a lot slower in approving drugs like this than they are in other countries and women there have been taking it without a problem.
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  • BabyDavisonBabyDavison

    Here's the info that my hospital gave me when they recommended that I start Dom (written by jack Newman):

    https://www.gentlemothering.ca/BF-%20FDADomperidoneResponse.pdf

    Basically, 2 people died when getting the drug by IV back in the 80's and they were alreasdy sick to begin with.  I take Dom and have had the full support of my LC, OB and Pedi. 

    GL with your decision.

     

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  • susanbsusanb

    My point wasn't that you should never take anything off label - but that you should not take something off label that there is a warning about. Now I didn't see the date of the info - that might have told me to look for something more up to date. In all I would never take any drug off label when there was a warning saying that taking it for that purpose could be harmful or fatal - to me that would just be common sense.

     If your doctor says it can be taken safely - fine - but given only the information in the link presented - I'd never chance it. I never had to take anything prescription because the fenugreek and blessed thistle almost doubled my supply and I had plenty of milk. 

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  • SNL0605SNL0605
    imagesusanb:

    My point wasn't that you should never take anything off label - but that you should not take something off label that there is a warning about. Now I didn't see the date of the info - that might have told me to look for something more up to date. In all I would never take any drug off label when there was a warning saying that taking it for that purpose could be harmful or fatal - to me that would just be common sense.

     If your doctor says it can be taken safely - fine - but given only the information in the link presented - I'd never chance it. I never had to take anything prescription because the fenugreek and blessed thistle almost doubled my supply and I had plenty of milk. 

     

    Susan- I know you didnt mean it that way....nor did I mean it to sound like I was coming down on you.... I was trying to say that I was frustrated w/ the negative info out there when there is a great deal of positive too. I just hate that in the USA we scare patients into refusing meds because of the almighty FDA, when the majority of the time the FDA is light years behind the rest of the world. Im sorry if it felt like I was directing my reply at you...I certainly didn't mean it that way... I meant it to be informative and to express my frustration. I am glad that fenu and bt worked for you... I was on the max dose of them both and had NO change in my supply.

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  • SkatcatSkatcat

    I'm glad you posted this, I was just asking my GP's office about domperidone today! (The nurse had never heard of it and told me to ask my OB).

    I agree with the pp though, the FDA is ridiculously biased and behind on the time. That said, as a breast-feeding mom, I think caution is always the word of the day. I plan to ask my OB about it soon..I am very worried about my supply!

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