I'm not a MoM, but I have been following the story of your boys for a while -- you are such an inspiring mom! In any case, this post just came up on 0-6, and I hoped it would provide you with a bit of encouragement for Jax.
https://community.thebump.com/cs/ks/forums/thread/10099511.aspx
Best wishes always.
Re: **sweater**
WOW - thanks! I was just cringing at the sight of the clock and realizing I had to stretch out Jaxon's neck and listen to him scream in pain and look at me with tears in his eyes. He always looks like he's saying "why mommy?!"
?breaks my heart...?
Oh, sweetie -- I'm so sorry. I can't even imagine. You know you're helping him...but I'm sure that doesn't make it any easier.
A smile for you? It's like looking into my future...