Doctors at the Children's Hospital where DS is at now wants to perform surgery and put in a g-tube because DS does not suck or swallow.
Does anyone have children with a g-tube? What is your experience?
My son has had a g-tube since 3 days old but we didn't have a choice. The mic-key button is really easy to use. I'm sure they will keep doing therapy with your son and he will still learn how to eat but you have to make sure he is gaining weight until then.
Does he have an ng-tube now? It seems like a g-tube would be so much easier than an ng-tube but Drake never had one. Surgery is never fun but this one is pretty common.
Do you have any specific questions I can answer for you?
Yes, he has an ng-tube now. I don't know what a mic-key is, what is that?
The mic-key is a button that they put in the opening that you can
open and close to attach the tubing. It stays in place with a
balloon that you fill after you insert it. Some doctors just leave the
tubing but that seems so much harder to me. That might be a good
question for you to ask your doctors - when and if they plan on using a
The reason I say it seems so much easier than an ng-tube
is that it little fingers aren't able to pull it out as easily.
We've had Drake home for 11 months now and the only time he got it out
on his own was yesterday when he got the tubing caught under him while
trying to get off the couch. It causes a few problems
now that he is mobile but it is his only way to get nurishment so we
have learned to deal with it.
I suck at positng links but try this website.