Immunology/Repeated Loss Testing Question

lincoln79

Anyone who has a list of immunological/repeated loss question, bring it on

TIA! 

Edwina.McDunnough

Check the FAQ. There is an RI section. GL.

lincoln79

thanks, i just want to be informed at the RI tomorrow.

going through all my records now, feels like a kick in the gut wading through each failure page by page. 

megs3084

lincoln79:

thanks, i just want to be informed at the RI tomorrow.going through all my records now, feels like a kick in the gut wading through each failure page by page.nbsp;

I felt the same way with my records and then again when going through them w the ri. Good luck tomorrow!

luvboston

Make sure you ask how many cycles it takes one of their patients in your situation to get pg and stay that way. For example I was told 3 cycles by Braverman and beer said 1

Edwina.McDunnough

luvboston:

Make sure you ask how many cycles it takes one of their patients in your situation to get pg and stay that way. For example I was told 3 cycles by Braverman and beer said 1

How can they know this? My pregnancy was "perfect" by multiple professional standards, including my RI, and it still ended abruptly and for no known reason. And no RI can prevent a loss due to aneuploidy. If you want to go whole hog and include genetic screening into your cycles, etc then I'd be sure to ask what the costs involved are in addition to the overall costs of treatment and care after BFP. Dr KK sees you through the preg (I think), while Dr B sees you through first tri only. Seeing and being treated by an RI is not cheap by any measure and knowing up front what is involved is really important. As is being knowledgeable about treatment that they may recommend that you're not altogether comfortable with.

megs3084

Yes Dr kk sees you throughout your pregnancy

hmz819

Here is a list of questions that I found from another site I am on:

  1.      What are our chances at a successful pregnancy WITH immune treatment?

2.      What are our chances at a successful pregnancy WITHOUT immune treatment?

3.      What are the chances I will be one of those patients you cannot help?

4.      How did my immune problems start?

5.      What are the long term health consequences of my immune problems?

6.      With immune treatment, what are the odds per cycle that I will conceive?

7.      How will we know when it is ?safe? to conceive?  What test results are needed?

8.      What tests do I need to repeat when while still trying to conceive? How often do I need to repeat these?

9.      When I receive a positive pregnancy test, what do I do?

10.  How will my treatments change once I receive a positive pregnancy test?

11.  What tests should I have during pregnancy and how often should I have them? Ultrasounds? Monitoring?

12.  What are the chances of a loss on full immune treatment? First Trimester? Second trimester?

13.  How will these immune treatments influence my longterm health?

14.  What is the total cost of these treatments preconception up through to delivery?

Blood level NK questions

15.  What does my NK Assay result test mean? How bad are my numbers? Will IVIG work for me?

16.  Do I need IVIg? How much? How often?

17.  What is the success rate of full term pregnancies with IVIg
that you have seen?

Humira/TH1TH2 questions

18.  How will we know if the Humira is working? What happens if we get some kind of cytokine flare in pregnancy (after we have stopped the Humira)?

19.  What side effects should I expect with Humira or Enbrel?

20.  What do my cytokine (TH1:TH2) results mean?

LIT questions

21.  Could I benefit from LIT?

22.  Why are my LAD results so low if I have had a live birth before?

23.  What does the T regulatory cell test mean?

ANA/prednisone questions

24.  What are the long term health implications for my positive ANA result?

25.  What are the side effects of prednisone? Dexamethasone?

Thrombophilia/Lovenox questions

26.  What are the long term health risks with my MTHFR condition?

27.  Should I have my family tested too?

28.  MTHFR - does the homocysteine level matter? Is MTHFR result different from the homocysteine issue?

29.  What are the risks of taking Lovenox? Am I candidate for Arixtra?

Hormone/cycle questions

30.  How soon after ovulation do I start progesterone?

31.  Are HCG shots during luteal phase/early pregnancy beneficial?

32.  Light periods/heavy periods ?is that an issue?

33.  How early do I start pregnancy testing in the cycle?

Natural medicine

34.  Have you ever seen immune conditions improve with natural medicine?  If so, what natural medicines would you recommend?

35.  Do you work with an acupuncturist? If so, who?

36.  Will fish oil interfere with my Lovenox?

37.  Is it safe to be on Humira and natural anti-TNFa agents at the same time?

Insurance questions and other
 

38.  My insurance will not cover labs or medications prescribed by an
out-of-network doctor. Can I have a local doctor order the medications?

How do you work with a local doctor? Can I consult with you, bring your
recommendations to her, and have her contact you if she has concerns?