Lupus? - XP on high risk

robbie3982

According to my rheum I have "undifferentiated connective tissue disease/incomplete lupus."  Basically, he thinks it's lupus, but I don't have enough symptoms yet for an actual diagnosis.  He said I may never fully develop it, that we'll just have to wait and see.

I contacted him when I found out I was pregnant with #3 and he's recommending that I see a high risk OBGYN this time around.

I didn't start having autoimmune issues until after DS2 was born, so this is totally new to me.  DS1 and DS2 were both med and intervention free births and we'd been hoping for the same this time around too.

Anyone else dealing with something similar?

katiejanie26

One of my BFFs, who had her son the same day I had mine, has lupus. She was in remission for about 6 years before she had her son. She had been feeling very good before and during her pregnancy. She didn't go to a high risk ob, but she did go regularly

ScarlettV

I'm sorry to hear this, and unfortunately I can't help; but I'm commenting because for years I was weirdly sick and many docs thought I was developing lupus; but I never fully tested positive I guess. I've never heard this term but I'm wondering if this m

Bethanyc1492

My  mom has lupus and she has had two kidney transplants and a list of other stuff that has came with it. I would follow his advice though and find a high risk obgyn. My mom also found out after her 2nd child. It is not something to risk i could say

kimstober

Hi there. When I was in college they thought I had lupus but could never get a positive test. After a year of running fevers and being in pain they finally diagnosed me with rheumatoid arthritis. I'm not saying that's what you have but I would look into i

Bookwormyone

I have Mixed Connective Tissue Disease which is a mix of lupus, scleroderma and polymyositis.  I have primarily lupus symptoms and at first that's what my rheumatologist thought I had.  

I saw a high

BritneyRussell26

Not sure if you are into reading bogs but the sweet season blog blogger is Ashley Slater is pregnant right now and has lupus. She writes about her pregnancy and she's super nice so you could probably email her. Good luck :

lhuttlinger

Me too!!! I am so glad someone else has this too! I go to a perinatologist as well as an ob.