I'm going to be the next X-(wo)man....Endo Girl
kflynn81
member
Yes thats right folks....looks like I'm a mutant. LOL
Had my Endocrinologist appointment today. I wasn't to happy about it since I really just wanted to schedule my growth hormone stimulation test and be done, but whatever. The fellow they insist I see has NO freakin' idea what to do with me. Today she even said so....great, thanks!
When the attending physician came in, I at least felt a little better. He was able to answer my questions where I was satisfied with the answers. He said from the crazy wonky hormones I have going on, its more than likely a genetic mutation of my pituitary genes. That specific mutation causes certain hormones to be out of sync....growth hormone being one. He poked at my flab and poked at my neck and said that I just "looked like I was growth hormone deficient" based on where my fat deposits are located. One, specifically on my neck....as he poked it, he says to the fellow "see this fat? Thats not supposed to be there". I'm like, great thanks again!
At any rate, they drew only one lab today , my IGF-1 (aka growth hormone) and depending on the results is how we'll proceed. If its low for sure they're giving my daily GH injections forever. If its low normal they're doing the stim test. If its totally awesome well, then FML.
On the plus side, the IGF-1 levels should be back by next week sometime so I'll at least know when and what the next move is going to be!!
NTNP 2009-2012 TTC since 2012:
- Clomid, 2 IUI cycles, and 5 IVF cycles = BFN
- FET #1 August 2013 = BFP! EDD 5/11/14
- Jack dx at 19w1d with Dandy Walker on 12/16/13
- Severe Pre-e /HELLP set in Jack born sleeping at 20w1d on 12/23/13
- FET #2 --July 2014 BFP! --- EDD 4/5/15
Jack has handpicked his sibling up there 
My blog about IF and loss ...
Kate's IF Blog
Re: I'm going to be the next X-(wo)man....Endo Girl
Wow. Great bedside manner. Have you seen a general endocrinologist before or is this the first time? If your GH is low and you start on injections, will your fertility be restored? I am not familiar with GH effects on the menstru
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, beta #3 3/4: 268 told to stop meds and let nature take its course. requested 4th beta (3/6); Beta hell for 2 months.
Married June 2011 Dx: anovulatory due to prolactinoma (1.5cmx 1.5cm in 2006)
April 2012: MRI- questionable cyst 8mg by 12mm in pituitary ; referred to RE by Ob-gyn after amenorrhea x 4+ months, provera ineffective, low estrogen level
cycle 1: May 2012, clomid 50mg; cycle cancelled, thin lining, no response
cycle 2: June 2012, femara 5mg; cycle cancelled, no response
cycle 3: July 2012, femara 7.5mg; cycle cancelled (largest folli on Cd12 & cd 16: 11, lining 4)
Repeat MRI July 25,2012- Cyst unchanged, likely old infarction.
Aug. 8: met with RE, move to injectables if HSG and SA normal
Aug. 23: HSG all clear; DH- perfect
Switched to a new RE in early Sept. IVF here we come
Genetic testing reveals: Fragile X- Intermediate risk/grey zone.
IVF#1: ER 11/30: 14 retrieved, 10 mature, 7 fertilized. E2 prior to trigger 5200. Decision made to freeze 6 embryos and transfer later due to OHSS.
IVF#1.2/FET #1: estrogen injects start 1/18, FET delayed to try to thicken lining. lining 5.4mm. FET- 2/18- transferred one 3AA expanded blast. BFP 5dp5dt. Beta #1- 2/27 9dp5dt- 102.27 beta #2 3/1: 147
FET # 2: endometrial scratch 5/6, added estrace vaginally and ASA to delestrogen and PIO. June 10- transferred one 4AA hatched embryo, BFP 4dp6dt, Beta 1 (9dp6dt) 187, Beta 2 (11dp6dt): 412; Beta 3 (15dp6dt ): 4452. U/S #1- one beautiful embryo with a heartbeat of 133 at 7 weeks. 8 weeks: heartbeat 156. EDD 2/26/2014: born 2-3-14 induced due to Pre-E and HELLP at 36w5d.
12/1: met with RE to discuss trying for #2
NTNP 2009-2012 TTC since 2012:
Jack has handpicked his sibling up there
My blog about IF and loss ... Kate's IF Blog
NTNP 2009-2012 TTC since 2012:
Jack has handpicked his sibling up there
My blog about IF and loss ... Kate's IF Blog
<
, beta #3 3/4: 268 told to stop meds and let nature take its course. requested 4th beta (3/6); Beta hell for 2 months.
Married June 2011 Dx: anovulatory due to prolactinoma (1.5cmx 1.5cm in 2006)
April 2012: MRI- questionable cyst 8mg by 12mm in pituitary ; referred to RE by Ob-gyn after amenorrhea x 4+ months, provera ineffective, low estrogen level
cycle 1: May 2012, clomid 50mg; cycle cancelled, thin lining, no response
cycle 2: June 2012, femara 5mg; cycle cancelled, no response
cycle 3: July 2012, femara 7.5mg; cycle cancelled (largest folli on Cd12 & cd 16: 11, lining 4)
Repeat MRI July 25,2012- Cyst unchanged, likely old infarction.
Aug. 8: met with RE, move to injectables if HSG and SA normal
Aug. 23: HSG all clear; DH- perfect
Switched to a new RE in early Sept. IVF here we come
Genetic testing reveals: Fragile X- Intermediate risk/grey zone.
IVF#1: ER 11/30: 14 retrieved, 10 mature, 7 fertilized. E2 prior to trigger 5200. Decision made to freeze 6 embryos and transfer later due to OHSS.
IVF#1.2/FET #1: estrogen injects start 1/18, FET delayed to try to thicken lining. lining 5.4mm. FET- 2/18- transferred one 3AA expanded blast. BFP 5dp5dt. Beta #1- 2/27 9dp5dt- 102.27 beta #2 3/1: 147
FET # 2: endometrial scratch 5/6, added estrace vaginally and ASA to delestrogen and PIO. June 10- transferred one 4AA hatched embryo, BFP 4dp6dt, Beta 1 (9dp6dt) 187, Beta 2 (11dp6dt): 412; Beta 3 (15dp6dt ): 4452. U/S #1- one beautiful embryo with a heartbeat of 133 at 7 weeks. 8 weeks: heartbeat 156. EDD 2/26/2014: born 2-3-14 induced due to Pre-E and HELLP at 36w5d.
12/1: met with RE to discuss trying for #2
NTNP 2009-2012 TTC since 2012:
Jack has handpicked his sibling up there
My blog about IF and loss ... Kate's IF Blog
