Special Needs

Opinions or advice please.

Hi All,

I hope it's ok that I post here looking for some advice, opinions or just a "stop being a silly ftm".

Background:

7 month old baby boy. Has met all of his milestones except for rolling back to belly. He does roll belly to back.

Over the summer I noticed he had a little wiggle... almost like he was shivering. Except, he was smiling, not in pain at all/didn't seem bothered by it. He did it mostly when he was laying down. He also began to CONSTANTLY move his legs and kick them, rather intensely, on the floor.

Now that he is sitting primarily, I have noticed the wiggling has gotten a lot more frequent. His kicking is still the same (a lot), but it mostly looks like he is just excited.

My family calls him "busy" and says his wiggles are him dancing or just figuring out his body. I am nervous though. Mother's intuition is telling me that it's not normal and Dr. Google is telling me that it could be ADHD, or mild cerebral palsy.  

I realize you don't know my baby and that I should probably just speak to me pedi but I was hoping someone has seen this before or something similar and has some advice. If you think I am being a silly ftm please tell me so. I am really at a loss.

TIA!  

Warning No formatter is installed for the format bbhtml

Re: Opinions or advice please.

  • imageimimahoney:

    Hi All,

    I hope it's ok that I post here looking for some advice, opinions or just a "stop being a silly ftm".

    Background:

    7 month old baby boy. Has met all of his milestones except for rolling back to belly. He does roll belly to back.

    Over the summer I noticed he had a little wiggle... almost like he was shivering. Except, he was smiling, not in pain at all/didn't seem bothered by it. He did it mostly when he was laying down. He also began to CONSTANTLY move his legs and kick them, rather intensely, on the floor.

    Now that he is sitting primarily, I have noticed the wiggling has gotten a lot more frequent. His kicking is still the same (a lot), but it mostly looks like he is just excited.

    My family calls him "busy" and says his wiggles are him dancing or just figuring out his body. I am nervous though. Mother's intuition is telling me that it's not normal and Dr. Google is telling me that it could be ADHD, or mild cerebral palsy.  

    I realize you don't know my baby and that I should probably just speak to me pedi but I was hoping someone has seen this before or something similar and has some advice. If you think I am being a silly ftm please tell me so. I am really at a loss.

    TIA!  

    Deep breath!

    P has mild CP.  Their are a few CP moms here whose children are young-ish. P doesn't have a lot of spacicity and she doesn't 'constantly move her legs or anything like that.  She just get tight, etc.  

    Did you have any complications during pregnancy/delivery?  I personally would not be leaning towards ADHD but some others can chime in on that as well.  

    I would go to your pedi and let them know your concerns, also you are going to want to see a pediatric neurologist.  Even if the pedi dismisses you or tells you it's nothing the pedi neuro is who you would want really telling you that it's nothing.

    Back to belly can be hard if they have some low tone going on but if he is sitting then it may not be related at all.  How does he kick his legs while sitting without loosing his balance?

    Also..take videos so that you can show the pedi & neurologist.  

    Good luck! 

    DD1(4):VSD & PFO (Closed!), Prenatal stroke, Mild CP, Delayed pyloric opening/reflux, Brachycephaly & Plagiocephaly, Sacral lipoma, Tethered spinal cord, Compound heterozygous MTHFR, Neurogenic bladder, Urinary retention & dyssynergia, incomplete emptying, enlarged Bladder with Poor Muscle Tone, EDS-Type 3. Mito-Disorder has been mentioned

    DD2(2.5): Late term premie due to PTL, low fluid & IUGR, Reflux, delayed visual maturation, compound heteroygous MTHFR, PFAPA, Bilateral kidney reflux, Transient hypogammaglobulinemia, EDS-Type 3


  • Thanks for your response, I really appreciate it! 

    I started to develop HELLP at 37.5 weeks, that was my only "complication". I had random low platelets and other odd test results but nothing to signal HELLP earlier than that. I delivered him at 38 weeks exactly via c-section. 

    He mostly kicks when he is on his back. He is always smiling, which is why my family thinks he is just excited and figuring out his body. 

    When he is sitting, it is mostly the wiggling. I would say he does it a few times an hour. He has started to reach out to us and appear like he is getting into standing/scooting position and is balance appears great. He was a pretty early sitter, but he can not get into the seated position on his own yet.

    He will roll on to his side but never on to his belly from his back. He seems to always get suck on his side, with one arm keeping him from getting all the way over.  

    Warning No formatter is installed for the format bbhtml
  • Loading the player...
  • DS2 (3yr) has mild to moderate CP (probably more moderate). He rolled one direction (can't remember which) around 4mos old, got to his side around 7mos and seemed stuck there for awhile (as in not getting all the way over), and finally rolled the opposite way at 9mos.

    I'm trying to envision the wiggling. You said it was like a shiver but that it was his legs. Is his whole body "wiggling" or does his upper body shiver and his lower body wiggle? DS2 doesn't wiggle unless he is dancing but you know that is what he is doing.  He did have ankle clonus when he was a baby (eventually it went away) which was his foot would shake really fast.  Every now and again he has a shiver which I describe mainly as a like if you had a cold chill or something but it is totally random and I've only seen it when he is seated (ex: eating).

    I second seeing a pediatric neurologist AND taking videos. Videos are worth a thousand words and the doctor (pedi and the neuro) can actually see what you are talking about. Trust your mommy gut. It could be nothing but I'd rather see a specialist and get it checked out then wait.

  • imageMaxandRuby:

    DS2 (3yr) has mild to moderate CP (probably more moderate). He rolled one direction (can't remember which) around 4mos old, got to his side around 7mos and seemed stuck there for awhile (as in not getting all the way over), and finally rolled the opposite way at 9mos.

    I'm trying to envision the wiggling. You said it was like a shiver but that it was his legs. Is his whole body "wiggling" or does his upper body shiver and his lower body wiggle? DS2 doesn't wiggle unless he is dancing but you know that is what he is doing.  He did have ankle clonus when he was a baby (eventually it went away) which was his foot would shake really fast.  Every now and again he has a shiver which I describe mainly as a like if you had a cold chill or something but it is totally random and I've only seen it when he is seated (ex: eating).

    I second seeing a pediatric neurologist AND taking videos. Videos are worth a thousand words and the doctor (pedi and the neuro) can actually see what you are talking about. Trust your mommy gut. It could be nothing but I'd rather see a specialist and get it checked out then wait.

     

    Thanks for the advice ladies, I really appreciate it!

    As for the bolded ^ his legs do the constant kicking when he is laying down. When we stand him up he jumps, which I have read is very normal. The wiggling, or shivering (as it might appear) is when he is sitting. It seems to be just from his waist up. Honestly, he always looks like he is dancing.. except I'm sure it is too early for him to be "dancing". 

    In general, he is super active. He LOVES his jumperoo. He loves picking up and inspecting toys and is really loving sitting and leaning forward. Just tonight, it started to mimic our hand movements and started to wave. He always seems like he wants to move except he can't yet.

    If it wasn't for the wiggling and kicking I would never think there might be something wrong.   

    Warning No formatter is installed for the format bbhtml
  • Ds was a major kicker before he could stand/walk. He was constantly kicking like crazy and people always commented on it, including his PT and OT. He really seemed to seek out movement, which can be related to sensory issues. Now that he's up and about, he just runs everywhere in his less balanced way, lol. But he also had a lot of other odd movements along the wya, including rapidly shaking his head 'no' from about 6 months until about 15 months (and then just started again a bit...). He also had the shaking movement you describe I think. At least for ds, it was almost like his whole body was taken over by a sudden shiver. We only caught a few episodes of this, but he had several other 'minor' neurological issues that fell under the same umbrella as the shivers. All came on suddenly, and eventually subsided. They are considered benign paroxysmal dystonic movements (benign because they do go away on their own without intervention). That said, that is a condition that requires others to be ruled out. If you feel that this is truly an issue worth pursuing, then you can seek a consult from a neurologist. That said, it will most likely lead to unnecessary testing that will probably result in nothing. That is the experience of many. If you have other signs of something going on (sudden lack of progress in reaching milestones, regressions, other odd movements), then I would definitely pursue it. But for now if I were in your shoes, I think it would be more of a wait and see issue. As for ADHD, that is something I have on my radar, but it is nothing that could even be considered or possibly diagnosed until at least 3 and more likely 5+ years old.
    imageLilypie Premature Baby tickers imageLilypie Premature Baby tickers
  • Hello! 

    My DD has CP.  And, I also had HELLP.  But, I developed HELLP at 26 weeks, and DD was born 14 weeks premature because of it.  Furthermore, I am convinced DD has CP because of her prematurity, not because of the HELLP.  

    As far as the symptoms you describe, I've never noticed DD shivering.  But, she does kick her legs a lot while on her back.  I've never thought that was related to her CP, but I am also a FTM.  And, DD just got the hang of rolling, and we are currently working on sitting (obviously, DD's CP is a little bit more severe).

    My DD is also a very happy child.  She smiles and laughs all the time, and hardly ever cries.  So, I wouldn't push aside your concerns just because your child is a happy child (just count your blessings).

    I think the PP have pointed you in the right direction.  Get a Neuro consult.  The neuro might say that it is too early to do any testing, or testing might not reveal anything, but at least you will be doing your due diligence as a parent.

    Also, I would recommend calling your local Early Intervention program.  After it was apparent that DD wasn't going to meet her milestones on time, I forgot everything about typical developmental milestones.  So, I don't know if your son's inability to roll means he is behind or not, but it never hurts to get an evaluation (and it's free!).

     P.S.   Your son is adorable!

               image      image      image
    image
This discussion has been closed.
Choose Another Board
Search Boards
"
"