High-Risk Pregnancy

Trying again - Any HHT pregnancies out there?

I don't know if this board would consider it high risk, but this is the only place I can think of to poll to see if there are others out there.  HHT is a hereditary disease affecting thr formation of capilaries.  There are not a lot of studies related to preganancy and HHT, so all of my doctors are playing it safe with me.

Would love to know if there's anyone out there to chat with about symptoms and pregancy issues.

Thanks!

*** DS born February 21, 2013 - Toronto, Canada  ***
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Re: Trying again - Any HHT pregnancies out there?

  • You are not alone. I have HHT. I am currently 36 weeks pregnant with my first. I haven't had too many complications so far except for an increase in telangiectasias on my skins and occasional nose bleeds. My doctors really don't know a lot about this disorder but they have scared the crap out of me about excessive bleeding. I'm terrified!!! How have you been??? And what are your doctors saying or doing???
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