Today, we received the final verdict from our MFS. Our baby's intestines are outside the body in a separate sac, not just a few, but all of them. Also, the brain is located outside of the skull. There is nothing that can be done now and we must figure out our next steps. I never thought I would be making these choices or figuring out these logistics of the next days of my life. I just want to move on, but saying goodbye has been so difficult for me to do.
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Re: Saying goodbye this week....
Oh I am sooo sooo sorry about what you are going through and the decisions that you will have to make. We too had to make the heart wrenching decision to tfmr bc our baby was diagnosed with Trisomy 13. She was born 2 weeks ago tomorrow.
So please, please, please do not hesitate to private message me. I will even give you my number if you want. I won't lie...the next few days and weeks will be the hardest you will go through. But lean on others when you need to please. I don't know where you live, but I was put in contact with a non-profit group to help us through our difficult time. Hopefully, you can find the same type of compassionate group where you live!
Like I said, do not hesitate to private message me! Lots and lots of love and prayers you way as I type!!!
Make a pregnancy ticker
(((Hugs))) to you! I am so sorry for what you are experiencing right now. My thoughts and prayers are with you. I am so sorry!
- Leslie
~ Mommy to Aaron, 21 months and to our angel, Ethan, born sleeping at 18w on 6/15/12.