Parenting

If your kid has/had pyelectasis

We found out at our anatomy scan that DS has dilated kidneys (with a little extra fluid in each). We were sent for a follow up ultrasound at an MFM where it was confirmed. We were told to come back around 30 weeks gestation and they would do another scan and see if the problem had resolved on its own. We were told that it almost always does, and not to worry.

Today, we had our follow up scan and the problem was still there. On one side it seemed even a bit worse than it was initially. The MFM scheduled us for another ultrasound in four weeks, but said the likelihood of this resolving on its own at this point was very slim, and DS would more than likely be born with this. He said at that time this would then be turned over to our pediatrician for further ultrasounds and treatment. He didn't seem too concerned, and for the most part, neither are we. 

I would love to hear from anyone who has experience with this though. Especially those whose kids were in fact born with this "condition". I am curious as to how this is handled after birth. I'm not terribly worried, but I am concerned as I thought this would have resolved by now, and it hasn't. So I am trying to find out what happens next I suppose.

 ETA:

This is a wiki link to the condition

 https://en.wikipedia.org/wiki/Pyelectasis

Re: If your kid has/had pyelectasis

  • DS had it in both kidneys.  He had another ultrasound at birth, which showed they were still enlarged and was put on prophylactic antiobiotics for 6 months.  He had to go in for yearly scans for 3 years.  One kidney resolved on its own and the other was only slightly enlarged.  Since he never had any clinical symptoms (no UTI's), they pretty much deemed him okay.  But told us to keep an eye out for unexplained fevers accompanied by flank pain.
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  • SGC29SGC29 member

    Thank you so much for responding! I was worried I wouldn't find anyone with any experience on this. They told us at this point DS will likely be born with this, and that he will need an ultrasound soon after birth. That is all I have known so far. It is nice to know that antibiotics seem to be an option as most everything I've found online just comes up with surgery as a solution. Hopefully we can avoid that. 

     Thanks again! 

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