My daughter was born with CMV. She was asymptomatic. The only reason she was tested was because I got a primary infection during my third tri so we knew there was a chance she might have gotten it. We are being treated by the infectious disease department at WVU Children's Hospital. The said we can either do nothing and see if she's one of the 8% who develop hearing loss. Or we can try the experimental drug Ganciclivor which has side effects. Does anyone here have any experience with congenital CMV? Has anyone tried Ganciclivor?