I am a newbie here. I wanted a little advice to see if anyone else had a similiar situation. I was diagnosed with prolactinoma (1.5cm by 1.5cm) in 2006, prolactin level 1176. After 6 years of cabergoline, prolactin is 7.6 (best it's ever been). Went to OB after I stopped BC end of Feb. Got AF after last BC pill but haven't got it again. Been doing OPKs and pregnancy tests daily- with nothing. She ordered blood tests, MRI, referred me to RE and started me on provera (10 days). MRI- 0.8cm by 1.2 cm cyst "likely degeneration from prolactinoma treatment." which scares me somewhat because that still seems pretty large. Estrogen low (10). FSH, LH, AMH, and TSH all normal. After 10 days of provera, no period. Went to RE yesterday for the first time. He checked lining which is thin due to low estrogen. It sounds like even though my prolactin is the best it's ever been, estrogen is still out of whack and I won't get my period on my own. He explained to me that there are other types of prolactin that may be excreted causing the problems that are not detected in the blood test. They started me on Clomid yesterday to try to get me ovulating (50mg for 5 days). My eyes/contacts and mouth are dry. Did anyone else experience any of this? Does the dryness improve each day? Also any info on having low estrogen would be helpful.
Thanks
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Married June 2011 Dx: anovulatory due to prolactinoma (1.5cmx 1.5cm in 2006)
April 2012: MRI- questionable cyst 8mg by 12mm in pituitary ; referred to RE by Ob-gyn after amenorrhea x 4+ months, provera ineffective, low estrogen level
cycle 1: May 2012, clomid 50mg; cycle cancelled, thin lining, no response
cycle 2: June 2012, femara 5mg; cycle cancelled, no response
cycle 3: July 2012, femara 7.5mg; cycle cancelled (largest folli on Cd12 & cd 16: 11, lining 4)
Repeat MRI July 25,2012- Cyst unchanged, likely old infarction.
Aug. 8: met with RE, move to injectables if HSG and SA normal
Aug. 23: HSG all clear; DH- perfect
Switched to a new RE in early Sept. IVF here we come
Genetic testing reveals: Fragile X- Intermediate risk/grey zone.
IVF#1: ER 11/30: 14 retrieved, 10 mature, 7 fertilized. E2 prior to trigger 5200. Decision made to freeze 6 embryos and transfer later due to OHSS.
IVF#1.2/FET #1: estrogen injects start 1/18, FET delayed to try to thicken lining. lining 5.4mm. FET- 2/18- transferred one 3AA expanded blast. BFP 5dp5dt. Beta #1- 2/27 9dp5dt- 102.27 beta #2 3/1: 147 , beta #3 3/4: 268 told to stop meds and let nature take its course. requested 4th beta (3/6); Beta hell for 2 months.
FET # 2: endometrial scratch 5/6, added estrace vaginally and ASA to delestrogen and PIO. June 10- transferred one 4AA hatched embryo, BFP 4dp6dt, Beta 1 (9dp6dt) 187, Beta 2 (11dp6dt): 412; Beta 3 (15dp6dt ): 4452. U/S #1- one beautiful embryo with a heartbeat of 133 at 7 weeks. 8 weeks: heartbeat 156. EDD 2/26/2014: born 2-3-14 induced due to Pre-E and HELLP at 36w5d.
12/1: met with RE to discuss trying for #2