Update to my surprise BFP post

HAFranklin

I posted a couple of weeks ago that we got a surprise BFP (after it took 15 mos to conceive DS), and my concerns about epilepsy meds I was taking that may cause birth defects.

Well, I contacted my neurologist, and had a HORRIBLE experience. First, she never returned my call. Then, almost a week and several messages later, I finally was able to speak with a nurse. Then nurse told me that my Dr refused to change my meds to something less dangerous to my baby. And when I got upset (not yelling or cursing, just crying. I'm hormonal, ok? lol) she told me to grow up and hung up on me. THEN after I reported her to HR (AKA my BIL), my neuro finally called me back. She insisted on putting me on a med that was not covered by my insurance, and would cost me $367 a month! When I told her that wasn't possible for me, she told me to look into finding a new Dr.

So I did. And he has been amazing! He put me on a new medication that has a much lower chance of  birth defects, and also on a very large dose of folic acid to try to prevent them. AND he gave me enough samples to last 4 months! He also informed me that the super expensive med my former neuro wanted to put me on is one of the worst for birth defects. 

I had an u/s on Monday, and we saw the heartbeat! I'm feeling pretty run down and crappy but I guess that's to be expected. It's finally setting in, that this is really happening, and we are so excited! November can't get here soon enough!

Thanks for all the well wishes and support in my previous post!  

MirandaHobbes

That's some pretty harsh bedside manner by your former doctor/nurse! Glad to hear it worked out well and congrats on BFP!

meglew

Wow, your original doctor sounds awful!  I am glad that you found someone more competent and that you are getting the care you deserve!  I hope that you have a great pregnancy and congratulations on seeing your little one.

shopgirl78

Yay!  Glad you found a better doc and the pregnancy is going well!   Things all work out for a reason, right?  Awesome!

kelly&paul

glad things are looking up and sorry you had such a horrible time with your old nuero.

Do you mind shooting me a pm with your new ones info and where he is located? My moms just moved, again, and she's thinking of switching.

debs1018

Great news! Congrats!

HAFranklin

kelly&paul - You've got PM!

peekaboo716

Sounds like it worked out for the best! It's great that you have a new dr. that is being supportive. Congrats on seeing the heartbeat!

AnnapolisLari

I would contact the state review board about your treatment by the first doctor. They can't be allowed to behave like that or recommend highly teratogenic medications to people that they know are pregnant.

HAFranklin

Thanks, everyone!

Lari - My BIL is one of the heads of HR for this particular hospital network. Not only has the nurse been written up, and facing suspension, but he has already reported the dr. to the state review board. And all of the phone calls are recorded, so I have plenty to back me up.

It's so frustrating because this is the neurologist that initially diagnosed me in 2009, and I felt so comfortable with her that I followed her to her new practice that is over an hour from where I live. I don't know if her attitude changed because of the incident with the nurse, or what, but I am still shocked at the way she handled everything. 

brightning

AnnapolisLari:

I would contact the state review board about your treatment by the first doctor. They can't be allowed to behave like that or recommend highly teratogenic medications to people that they know are pregnant.

Ditto. And I'm glad you found a new doc. 

roxy_jj

That's great that you found a new doctor you love and were able to change your meds.

The first doctor is unbelievable!  I can't believe she told you to grow up, that's horrible.  

cnybride2be

Sorry you had to go through all of that.  But so happy for the heartbeat update. Congratulations!

hcmamm1

Glad to hear you found a better dr. and congrats.

MrsStubbs

How crazy. I'm glad you found a new doc.

Lucky428

(Lurker butting in)

It sounds like we are on the same med.  My neurologist said it's the best one for pregnancy and my OB said it's fine for BF too.  I'm also on a ton of folic acid because there is an increased risk of cleft palate with the medication.

I'm glad you found a great neurologist!