Driving myself crazy over results..

figgs0831

Sorry in advance for the rambling....

I recieved my bloodwork results in the mail yesterday.  My doctor hasn't discussed anything with me since I was supposed to be going to the MFM for a consult.  We didn't anticipate the wait the MFM had, so now I am stuck with these wonderful results and have been googling all morning.  So far, I tested positive for the following:

-compound heterozygous for the mutations, C677T and A1298C in the MTHFR gene

-Abnormal hemoglobin and hematocrit levels

I was also in the high-normal range for a few other things.  Unfortunately, they didn't test my vitamin levels like I had hoped, so I don't know if I have any deficiencies there.  Hopefully, I can talk them in to checking those as well.

Thanks to Dr. Google, I'm realizing that all of my issues were ponting to this.  I've consistently had 2 smaller then normal placentas, SCHs in both pregnancies, unexplained bleeding, previa in the 2nd, and the first was partially abrupted which is a common cause of pPROM... We are still waiting for the final report on my last pregnancy, but even that abrupted in the end (most likely due to the pPROM though).  Now I am just trying to figure out the infection part.

I also read that the 17P injections should be used with extreme caution in ladies with clotting disorders.  So I wonder, could the injections have pushed me over the edge of that delicate balance?  I was on baby aspirin and folic acid for both pregnancies, so obviously that wasn't enough.  I am hoping they will put me on an injectable blood thinner for the next round.

I feel like I am on information overload and am driving myself crazy with all this.  I just want to know what is going on so I can relax and begin to heal emotionally. We are going to be TTA until at least September/October, but I don't want to have all of these questions lingering. I want a plan.  Ugh.. so frustrating.

careyalis

Ugh!  I hate that you don't have anyone to make sense of your results for you. I'm waiting to get results back (they said it could take up to 14 days, and tomorrow is 14) but it never even crossed my mind that I might not be able to read them. I just want a definitive answer. Either it was not genetic and this will never happen again or it is genetic and there is a ___% risk that this will happen with every pg (hoping and praying with every fiber of my being for the first!) Good luck figuring out what it all means!  ((hugs))

figgs0831

careyalis:

Ugh!  I hate that you don't have anyone to make sense of your results for you. I'm waiting to get results back (they said it could take up to 14 days, and tomorrow is 14) but it never even crossed my mind that I might not be able to read them. I just want a definitive answer. Either it was not genetic and this will never happen again or it is genetic and there is a ___% risk that this will happen with every pg (hoping and praying with every fiber of my being for the first!) Good luck figuring out what it all means!  ((hugs))

Oh man.  I hope someone calls and speaks with you!  Under normal circumstances, my doctor would have had me come in to discuss the results or at least called.  It is the MFM consult that has messed this all up! I doubt she would have mailed the results if she knew that I had another month to go.

I think I am up to a 40-50% chance of another pPROM.....I am so not a fan of those numbers! 

Hopefully you get some good news!!!!

ally2011

I just posted on another thread that I am not sure sometimes if having access to as much information as we do is really such a great thing.  I guess in some cases it is, but in some I am just not so sure.  For me, I am not sure if I want to know that we likely have a 25% chance of a repeat with every pregnancy.  Of course I can't un-know (is that a word?) it now, but if given the choice, I think I might not want to know....or maybe I would.  How's that for a wishy washy comment?

Hugs Figgs, I hope your wait goes quickly.

Jenn 

pb127

(((HUGS)))  I hope you can get into the MFM soon to discuss everything. That's so much to be dealing with all at once, especially without guidance!

Carolee

I'm sorry you're feeling in limbo right now.  I hope you're able to meet with someone and get your questions answered/come up with a plan soon.  Big (((HUGS))).