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update on our situation..prayers please?

baze2baze2
in Infertility Veterans

I haven't posted in a while. We have been on hiatus from the IF issues. However, I am posting this to help others. We have MFI- unexplained. Until thursday!

My husband is in ICU in West Suffolk hospital in England. He was doing reserve duty when an episode of Shortness of breath came on. He went to the hospital. He is now - 4 days and 1 code blue later- dx'd with Hemochromatosis. He has had it since birth. He is now in COngestive heart failure, has a cardiac arrythmia and is critically ill. Basically his body does not eliminate IRON. It is deposited in the organs specifically the Liver, heart and pitutary (hence the IF) and joints.

I am with him in England..terrified of our future. Not knowing the length I will be away from the states. Terrified for the loss of my husband (this would be the second time as I was widowed once before)..

Please pray for us and know that this is another possible dx for infertilty. Treatment and cure is easy if it is caught before my husband caught his.

all my love.

Baze2

"Onward"--CathyMD Waiting since 07/5/2011 for our forever child! Yep we are adopting!
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Re: update on our situation..prayers please?

  • mdluv21mdluv21
    Oh sweetie I am so sorry.  Lots of thoughts and prayers for you and your husband.  ((hugs))
    TTC since 07/2009
    Me: PCOS, Blood/Immune Issues DH: Low all 3
    Jun.- Sep. 2010 IUI#1-#3 = BFN
    Oct. 2010 = IVF #1 = B/G Twins (passed away Feb. 2011)
    May 2011 = Myomectomy and trans-abdominal cerclage (TAC)
    Sep. 2011 = Surprise BFP = C/P
    Feb. 2012 = sFET #1 = BFN
    Feb.2012 = Hail Mary IUI #4 = BFN
    April/May 2012 = FET #2 w/our last two embies = BFP (Please let this be it!)
    Beta #1 8dp5/6dt = 234 Beta #2 10dp5/6dt = 695 Beta #3 12dp5/6dt = 1796 Beta #4 17dp5/6dt = 17,888 U/S #1 May 17, 2012 = Twins
    Baby B's heart stop beating at 9 weeks 5 days
    Our little miracle baby is a boy. :)

    Baby Boy Owen and Baby Girl Avery were born too early on Feb. 13, 2011 due to a pedunculated fibroid, incompetent cervix and suspected placental abruption.
    Lilypie Angel and Memorial tickers

    "What the heart has once owned and had, it shall never lose." - Henry Ward Beecher
    SAIF/PAIF Welcome
    Lots of love and luck to my PAIF/3T/IF Veteran ladies, especially my dear friend Zookie. Congrats to Papps, Teach84 and Starbuck on their little ones.
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  • Yellow_DaisyYellow_Daisy
    I'm so sorry Baze.  Lots of T&Ps going out to you and your husband.  (((huge hugs)))
    TTC since 8/2004
    Me - DX Hashimoto's Disease, Hypothyroid, Rheumatoid Arthritis
    DH - DX Azoospermia - Sertoli Cell Syndrome
    DS-IUI #1-4 BFN IVF #1 - BFP! It's a boy!!!
    Baby Birthday Ticker Ticker
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  • vanessagorcvanessagorc member
    Huge hugs base.  Many thoughts and prayers for Dh and you.  I pray for his recovery. 
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  • M&MBride0506M&MBride0506
    Oh my goodness. Sending prayers to you and your hubby baze. ((hugs)). Try and be strong.
    My Wonderful Sister is my GC!!!! 3 IUIs, 2 unmedicated, 1 50mg of Clomid = All BFNs Next step IVF!!!! Melinda & Michael 5*6*06 God Bless The Broken Road
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  • amaksym05amaksym05 member
    Oh Baze... I am so sorry. ((HUGS)). You and your DH are in my thoughts and prayers. We are always here for you, sweetie!


     
    Dx: PCOS, Anovulatory, Amenorrhea 2006
    TTC: Sept 2008
    IVF#1 Cancelled due to breast biopsy.05/01/20

    IVF#1.2- 9/2010 - Cancelled Oversurpressed

    IVF#2 Microdose Lupron 10/2010 Beta 11/09=BFN
    IVF#3 2/2011 - 2 blasts(2/25) Beta 03/11 =BFN
    IVF#4 Lupron 01/02 =2 blasts, beta's 1-4 198,234,398,3100!!BFP
    FET 3/2014 2 blasts BETA 3/20=BFP TWINS EDD 11/27 TEAM PINK!!!                   
    image

     


     

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  • illinigalillinigal member
    Oh no.  Hugs sweetie.  I hope your husband makes a nice recovery very soon.  Many T&P heading your way.
    TTC #1 since October 2008. Dealing with MFI.
    IVF #1 w ICSI in July 2010 = BFN
    IVF #2.1 in Oct 2010 converted to IUI = BFN
    IVF #2.2 w ICSI in Dec 2010 = BFN
    Met with new RE in new city on 1/31/11.
    IVF #3 w ICSI in April 2011. HPT on 5/9 = BFP!
    Beta #1 on 5/10 (10dp5dt) = 99.4. Beta #2 on 5/12 = 284. First u/s on 5/26. = Fraternal TWINS!
    Twin boys born & lost on 8/16/11 at 18w1d due to PPROM & preterm labor.
    IVF #4.1 in Jan 2012 converted to IUI on 1/7/12 = BFN
    IVF #4.2 w ICSI in Feb 2012. Lupron on 2/10. Stims on 2/18. ER on 2/29- 7R,6F
    ET scheduled for 3/5/12- nothing to transfer :(
    Dh seeing new MFI uro & Dh starting meds- June 2012.
    IVF #5 in Dec 2012 = BFFN.
    IVF #6 planned for Spring 2013. Praying for our take home baby/ies.
    **P/SAIF and P/SAL always welcome!**

    Lilypie Angel and Memorial tickers
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  • psychmusetlspsychmusetls member
    keeping you and your husband in my prayers.
    S/PAIFW
    Tara & Dave - TTC since September 2006
    PCOS - dx 1999 (amenorrhea) | freakishly long fallopian tubes
    Hypoglycemic | thyroid issues | severely anemic
    Multiple Clomid cycles of 50, 100, 150 - absolutely no response
    Follistim 50/100 | Follistim 75/125 | Follistim 100/150 IUI - all BFNs
    Converted IVF - BFP - m/c | FET - BFN | IVF #2 = BFN
    IVF #3
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  • Edwina.McDunnoughEdwina.McDunnough
    I am so sorry Baze. My thoughts are with your and your husband. I hope he recovers soon.
    +++
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  • JM1977JM1977 member
    I am so, so sorry to see this!  I will be praying for you and your husband!
    TTC with DOR, low morphology, fertilization issues
    IVF#1 Oct 2009 (CCRM) - BFN
    IVF#2 March 2010 - Poor response/cancelled
    DE IVF#1 Aug 2010 - BFN
    DE IVF#2 Dec 2010 - Transferred 1, 2 frozen - BFP!
    TTC#2 FET Jan 2013 - Transferred 1 - BFP!

    Baby Birthday Ticker Ticker Baby Birthday Ticker Ticker
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  • RFBsbrideRFBsbride member

    Oh My Goodness... I'm so sorry.

    I am sending you all the thoughts and prayers I have that everything gets better.

    HUGS

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  • jlcrane78jlcrane78 member
    Oh my goodness.  I am praying.  Please keep us updated if you are able.  *hugs*
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  • jessican08jessican08 member
    I am so very sorry you're going through this. I'll be sending lots of T&Ps to you and your husband. ((HUGE HUGS))
    TTC 12/2009
    Me: 32 - Stage II Endo / DH: 36 - Low count and morphology (1%)
    IUIs 1-3 BFN, lap Dec. 2010, IUIs 4-6 BFN
    IVF w/ICSI #1 - ER 2/8: 24R 19M 9F ET 2/13 2-5 day blasts (no frosties) = BFP - b/g twins!
    E & C Born 10/19/2012
    Lilypie First Birthday tickers
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  • meg_koolemeg_koole
    Oh sweetie! I am so sorry. I am unfortunately familiar with hemochromatosis (they thought that is what my DH had when he was having a bunch of liver issues, combined with the IF). I willing be praying for you and your husband. Please keep us posted!
    Our Blog - http://thedittemores.blogspot.com/
    Dx PCOS 2003/high fasting insulin/clotting issues DH Dx with low sperm count, motility and morphology. Varicocele repair (11/1/2010)
    2/2011 - Confirmed no improvement - On to Donor Sperm
    4 failed IUIs in 2010
    IUI#5 and 6- with DS, BFN
    Final IUI - Lucky #7! IUI with DS - 20.Jun.2011 - 21.5 mil motile! Not so lucky - BFFN and the end of our IF journey....
    Waiting for our family to be complete through Adoption - May 2012 - Hoping our baby finds us soon!
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  • Faith722Faith722 member

    I am so sorry.  I'll be praying for you and your husband.  I hope he recovers quickly.

    (((HUGS)))

    IVF #3 = Feb 2012
    beta#1 3/21 (14dp3dt)=413, beta#2 3/23 (16dp3dt)=785, u/s 4/11
    EDD 11/25/12
    **SAIFW** Baby Birthday Ticker Ticker
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  • njohnson1972njohnson1972 member

    I am so, so sorry to hear this about your husband.  I will keep you and your husband in my thoughts and I hope he makes a speedy recovery.

    (((hugs)))

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  • labbylover03labbylover03 member
    I'm so sorry you're going through this. Huge T&Ps for you and YH.
    image
    image
    Baby Birthday Ticker Ticker
    "Now faith is being sure of what we hope for and certain of what we do not see." Hebrews 11:1
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  • newsbabynewsbaby
    You and your DH are in my prayers.
    TTC since 8/07 DX - Severe MFI/azoospermia & MTHFR/ TESEs found sperm - 7/08 & 6/09/ 12/08 - IVF#1 - BFN/ 6/09 - IVF #2 - cancelled due to OHSS risk (had retrieval)/ 7/09 - FET #1 - BFN/ 9/09 - FET #2 - BFN/ 11/09 - IVF #3 with new RE cancelled twice - 10/09 & 11/09/ 1/10 - IVF #3 take 3 - BFN/ 4/10 - IVF #4 - first ever BFP on 5/13/10!!! 108 @ 10dp3dt/ 2nd beta 311!/ sono on 5/28/10 said TWINS!!!! Lilypie Second Birthday tickers
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  • Mrs.McIrishMrs.McIrish member
    T&P's for you Baze and DH. Keep us posted.

    TTC #1 since 8/1/10; Me:41 and BRCA1+, DH:46
    DOR (FSH 24.3)/ terrible egg quality ; homozygous MTHFR c677t
    5 IUI's: 2/11 to 6/11 and 1/12= BFN
    OE IVF#1-4 8/11-6/12= all BFN
    DE IVF#1 11/12 bad embryos= BFN
    DE IVF #2 2/13 BFP/Beta hell: m/c 5w6d
    CFNBC 7 months, not doing well; decided on guarantee program at RBA w/frozen DE
    DE IVF #3 1/14  ET 4BB; BFP;M/C 5w1d, incomplete m/c; MVA extraction in ER 7w1d

    DE FET#1 ET 3/1714; BFP, beta 1 3/27= 197, beta 2 3/31= 1586, beta 3 4/7= 13879!!
    First u/s= Twins with HBs at 6w2d! We are Team Pink x 2!!

    K & K born 11/21/14 at 38wks 4 days

    imageimage

    SAIF/PAIF Welcome


    http://waitingforraintostop.wordpress.com

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  • DeputiesWifeDeputiesWife

    Oh my -- I am so very sorry to hear this.

     

    I will keep you in my T&P. 

    TTC #2 since June '08

    ~*DD 10.21.07*~

    dx unexplained

    IUI #1-4 BFN

    IVF#1 June 2011 BFN

    IVF#2 Dec 2011

    Beta#1 12/21 : 812 Beta#2 12/23 : 1634

    EDD 8/25

    *PAIFW/SAIFW*

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  • EchloeEchloe
    I'm so sorry Baze.  My heart goes out to you.  Prayers sent.
    Beautiful Miracle Baby lost at 21 weeks due to pre-term labor and incompetent cervix. FET#1 BFN, FET#2 BFP, early loss. FET#3 BFN. IVF#2 BFFN. FET #4 BFP after removing bilateral hydrosalpinx and 3 months of lupron depot. Sticky Bun is here!! Image and video hosting by TinyPic Baby Birthday Ticker Ticker
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  • ginger67ginger67
    Im so, so sorry your going through this. Definitely praying for you and your husband. 
    1-20-09 BFP third month of Follistim IUI 02-19-09 MC 06-24-09 MC July IUI Follistim Ganirelix Ovidrel Crinone=BFN Aug. IUI Follistim Ganirelix ovidrel Crinone=BFP= scared sh**less 10-12-09 MC = 1 ectopic 1 perfect Dec. IUI Gonal-F Ganirelix Ovidrel Crinone Lovenox 01-02-10 BFP=scared sh**less again 01-06-10 CP SAIF ALWAYS WELCOME : ) March 2010 - IVF in progress converted to IUI 03-30-10 BFN April 2010 - IVF - BFFN June 2010 - IVF - BFFN July IUI BFP! March 26 2011 Gracie is here! imageImage and video hosting by TinyPic imageImage and video hosting by TinyPic
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  • Mandy_Lou83Mandy_Lou83 member
    Oh Baze, I am so sorry. Sending tons of T&P's to you and your DH.
    After 3 years of infertility we were blessed with twin girls through private infant adoption.
    Forever our's October 17th 2012
    Lilypie Second Birthday tickers
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  • kekiskekis member
    Oh my gosh, Baze.  You must be absolutely terrified.  Lots of prayers for you and your husband.  Please keep us posted and know we are thinking of you with lots of love.
    Todd & Kristin, 3.10.07

    After 5.5 years of loss, heartbreak, and empty arms, our dreams were fulfilled through the beautiful, selfless gift of adoption. We are amazingly blessed!

    Blog About Us | Blog About RPL/IF/Adoption

    imageimage

    Lilypie First Birthday tickers
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  • AnasaraAnasara

    Sending you tons of Ts & Ps!

    ((hugs))

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  • hollymichaelhollymichael

    Oh Baze, I am so sorry. I will be thinking of you and your DH.

    If you have any questions about hemochromatosis, let me know. I also have it. I do still lurk here, so if you page me, I will see it.

    ((Hugs))

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  • emcaemca member
    Tons of prayers for you and your husband. 

    After 1 IUI, 3 IVF's with CGH/CCS testing, 10 early miscarriages, and lots of tears and frustration, we are moving on to Domestic Infant Adoption!  We are so excited to see what the future holds.

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  • MAH123MAH123

    Oh Baze, I am so sorry! Huge hugs and tons of t&ps!

     

    1 ectopic 3 m/c's prior to 5/05 Un-freaking-explained IF 5/05 IVF, BFN 9/05 FET 3d5e, BFP = Beautiful Baby Girl (lucky pg #5) 8/08 Fet 3d5e, cp 12/08 IVF with PGD, transfer 3, BFN 5/09 FET transfer 4, BFN Hail Mary IUI with Follistim 9/11 BFP; 9/22 confirmed tubal/MTX 4/10 FET 3d5e, BFP!!!! m/c 5/26/10 1 year break and yet another m/c 5/11 FET #5 initial beat 121, second beta 7 Lap and removal of L tube and very mild endo 7/11 Suprise BFP 12/11 & m/c @ 8 wks. After 11 losses and one beautiful miracle our journey is over, we are thankful and at peace.
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  • Dragonfly1226Dragonfly1226 member
    I am so, so sorry. Sending tons of T& P's to you and your dh! (((((hugehugs)))))
    image
    Unexplained Infertility

    After two Clomid cycles, three injectable IUI cycles, two IVFs, two miscarriages, and one lap surgery, IVF #2 has brought us our little boy!

    Baby Birthday Ticker Ticker

    TTC #2
    After months of being postponed or cancelled, FET #1.3 (Natural FET) brought us twin girls!

    Baby Birthday Ticker Ticker


    Surprise! Baby #4 is due in March!
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  • SweetDahliaSweetDahlia
    I am so sorry. I am praying for you guys.
    PAIF and SAIF Always Welcome!
    TTC since 2007
    6 IUIs, 3 IVFs, and 2 m/c :< PCOS, Blood Clotting Disorder & MFI
    IVF #2 Aug 2011 is a BFN:<
    IVF #3 March 2012 is a BFN
    Not sure what to do now. Sad and lost.
    Lilypie Angel and Memorial tickers Lilypie Angel and Memorial tickers
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  • baze2baze2
    Thank you everyone. The prayers are working!
    "Onward"--CathyMD Waiting since 07/5/2011 for our forever child! Yep we are adopting!
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  • missred75missred75 member
    Oh, hun. I am sending tons of T&P your way!!! ::hugs::
    <a href="http://s108.photobucket.com/albums/n5/missred75/Disney/?action=view
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  • BeeBee08BeeBee08 member
    Keeping you and your husband in my prayers.  I am so sorry. 

     
    me 33/DH 36
    ttc since 10/2008; d/x: mild MFI, stageII endo
    ~~PAIF/SAIF Welcome~~
    11 IUI’s = 1 m/c (7w4d)
    IVF#1 January 2012 BFN, FET #1 April 2012 BFN
    Surprise BFP October 2012 m/c (7w), Surprise BFP April 2013 m/c (6w4d)
    IVF #2: July 2013, ET 1 embryo 7/18, beta 1 @ 14dp3dt - 757, beta 2 @ 16dp3dt - 1762
    U/S 1 @ 6w4d = 1 little frogger with HB of 118, U/S 2 @ 7w3d measuring right on track with HB of 160
    Stick Frogger Stick! Please!!!!!!!!!!!!!   It's a Girl, EDD April 7, 2014

    BabyFruit Ticker

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