xp: prays please? and update. — The Bump
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xp: prays please? and update.

I haven't posted in a while. We have been on hiatus from the the bump. However, I am posting this to help others. We have MFI- unexplained. Until thursday!

My husband is in ICU in West Suffolk hospital in England. He was doing reserve duty when an episode of Shortness of breath came on. He went to the hospital. He is now - 4 days and 1 code blue later- dx'd with Hemochromatosis. He has had it since birth. He is now in COngestive heart failure, has a cardiac arrythmia and is critically ill. Basically his body does not eliminate IRON. It is deposited in the organs specifically the Liver, heart and pitutary (hence the IF) and joints.

I am with him in England..terrified of our future. Not knowing the length I will be away from the states. Terrified for the loss of my husband (this would be the second time as I was widowed once before)..

Please pray for us and know that this is another possible dx for infertilty. Treatment and cure is easy if it is caught before my husband caught his.

all my love.

Baze2

"Onward"--CathyMD Waiting since 07/5/2011 for our forever child! Yep we are adopting!
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Re: xp: prays please? and update.

  • omg. prayers to you ad your DH.
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  • OMG. You and your H are in my thoughts. Please let us know if there is anything we can do as a group to help.
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  • Holy Feck. Prayers for you Love. 

    Is he intubated? How are they treating him? Sending you so much love and prayers right now. 
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  • Oh my gosh. I'm so sorry. Sending t&p. 
  • Thoughts and prayers are with you.
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  • Oh Baze, I am so sorry. Prayers for a speedy recovery. Please keep us posted.
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  • I'm so sorry. ((((hugs)))) I will be praying for a healthy recovery. You are in my thoughts. 
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  • sending lots of good vibes!
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  • Baze, I am so very sorry. Sending love and prayers. 
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  • OH my goodness. Sending prayers to you and your family. 

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  • Oh no! I'm so sorry. Tons of thoughts and prayers are with you and YH.
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  • Thoughts and prayers to you both. I hope they can do something for him.
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  • My thoughts and prayers are with you and your dh.
  • Thank you ladies. I need the prayers. So does my DH.

    ETS..he is not intubated but was having a fib. They treated him with metoprolot and digoxin. They did not know his Ejection Fraction was 10. So the combination caused him to decompensate. BP was 50/- HR=30. He has recovered slowly from this. Last night he was in atrial flutter. Today, I literally watched him on the monitor convert to a sinus rhythm. (although not completely normal..more normal)...His organs are damaged. The UK National Health System is doing case studies on him.

    the treatment will be slow "venous sections" which virtually means, blood donations. The only way to remove the iron is to remove blood and force the body to use more stores. It will take over 1 year to get his iron levels to normal with where he is. However, due to his low cardiac output, large volumes of blood can not be removed..it is a tight rope.

    On a postive, his kidneys haven't been affected. most other organs have been. Especially the liver..which now lights up on CT scan like a christmas tree from all the iron. (Wonder how he made it through TSA all these years! JK)...

    thank you for your prayers.

    "Onward"--CathyMD Waiting since 07/5/2011 for our forever child! Yep we are adopting!
  • omg, positive thoughts being sent to your DH and you! i'm glad you're there with him now
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  • omg.  Nothing but good thoughts, prayers, and wishes for quick recovery for your DH.  Take care of yourself!
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  • Keeping you both in my thoughts, hoping the doctors are able to help him improve and heal and come home with you soon.
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  • Thinking of both of you!  I'm sorry you're going through this and I'm also sorry that you are doing it away from home. Please keep us updated. 
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  • Sending you and DH tons of thoughts and prayers.
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  • My thoughts and prayers are with you and your family.
  • Omg I'm so sorry. I'll be thinking of your family
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  • thoughts & prayers to you and your family. I am so sorry.
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  • I will absolutely be praying for your husband (and you!). That must be absolutely terrifying. I am so sorry. 
  • Holy cow. I'm so sorry you guys are going through this! Thoughts and prayers for you and yours.
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  • ((hugs))

     

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  • I'm so sorry Baze. I'll be keeping your family in my t&ps.
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  • Oh my gosh, sending my T&Ps to you and your husband.
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  • You both are in my thoughts. I'm so sorry you're going through this!
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  • Oh no! Sending many T&Ps for you and your H. Keep us posted.
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  • Baze, I'm thinking of you & hoping everything heals quickly.

  • Oh, wow.  I am so sorry.  I will be thinking of you both, and hoping for a speedy recovery!

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  • Praying for you guys.
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  • WOW. I hope they figure everything out and get your dh better.

    T&P's to your dh & you. Hugs

  • Thoughts and prayers to both of you, also huge hugs. 
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  • Baze, I am so so sorry you guys are going through this right now. Lot of T&P for you both. ::hugs::
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  • Thinking of you and hoping your husband starts improving soon. 
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  • OMG, baze. Thinking of you & your DH and hoping he has a speedy recovery.
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  • I am so sorry. Prayers to you and your family.
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  • Thoughts coming your way. 
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