Phenylketonuria

starchai920

My son was born on September 9, after a normal pregnancy and delivery, and he was perfect in every way. A week later, the Department of Health called me to say his newborn heelstick came back abnormal and we had to get him re-tested. The second stick came back, he has PKU.

He's on a diet for life now, when he starts on baby food we'll have to count how much protein is in whatever he eats, because too much could have adverse affects on him.

I'm still getting used to carefully monitoring how much regular formila he can eat (15oz of Similac now) and dealing with weekly heelsticks to test his blood for the protein levels. I'm hoping to connect to other moms of PKU babies and children.