We found out that my little boy doesn't have a whole list of scary muscular dystrophies - we didn't actually find out what he has, we still only know he has significant hypotonia. But from what our neurologist said, that likely means that the prognosis is better than if we found something on the biopsy! So we are leaning towards a diagnosis of congenital myopathy, which he said is a broad catch all for these disorders.
Re: Good news from our muscle biopsy
That is great news
Hannah