I know it's still too early for a diagnosis for us yet, and we do not have enough information to even be sure something is wrong with our DD, but my pedi mentioned some of the regression of her development are signs of Retts and that she is keeping it on her radar. We are starting EI, and going to watch her development and see how things go for now.
I am just wanting to hear your stories. How your child was diagnosed, what life is like for you? When did you notice delayed development or regression?
I just want to be prepared for anything, and have any information I may need if my DD in fact does have Retts so that I can help the best I can.