back from EI core evaluation....its worst than I thought. Kinda long.

KrisBriMcBunny

She is significantly delayed in speech which I kinda knew but the rest is what threw me for a loop.

Here's what the developmental pedi wrote that were his concerns:

Michelle is not as flexible in her thinking and learning as one would expect for her age. Her ability to sustain attention and learn productively from her play is delayed. Her speech an dlanguage is not that of a child her age. She has some early repetitive sounds.  She has a restricted eating pattern and sensitivies to textures on her hands and mouth.

Diagnosis:
Obsessive Compulsive Disorder
Developmental  language Disorder
Attention variation.

Basically Michelle thinks and acts like an 18 month old instead of a 2 yr old.  The pedi said its definitely not autism which never really crossed my mind at all.  He also said he is seeing some Tourrette's Syndrome tendencies in her but its too early to tell and it could be more along the lines of OCD.  There's more to it all but thats the gist of it all and my mind is in a jumble right now.

She is going to be getting alot services from EI.  Speech therapy, pyschologist, physical therapist, and behavioral therapist...I know there's more but I cant remember.  We didnt get the written plan of action yet...but should get it by the end of tomorrow.

I knew there were gonna be some issues but I didnt think it would be this bad.  I'm kinda numb but I keep saying to myself over & over what the pedi said....its all fixable and managable.

Kristie

r9stedt

At least you know what is going on now, and it is treatable. ?

{hugs}?

julygal

That is a lot to take in.  It sounds like she will get a lot of support.  Keep positive.

MrsErickson

((((Hugs))))  I'm so sorry that it didn't go as well as you had hoped.  That's a lot of information to get thrown at you in one day.  Just rember, she's the same little girl leaving the office that she was when she went in.  I'm glad that they are getting you all of the help that you need.  And like the doctor said, these are all things athat are fixable and managable.  Hug your little one extra tight tonight!

AWD

What were some of the signs or things she did for them to get this diagnosis or know so much so quickly? It seems like they would need to be around her/ evaluate her for a long time in order to recommend that much therapy. I have never dealt with EI so I  have no clue what they look for etc...That just seems like so much info after just one evaluation KWIM?

shouldbeworkin

r9stedt:

At least you know what is going on now, and it is treatable.  

{hugs} 

ditto all of that.  BIG hugs!!!

RieTea

Wow...that must be a lot to take in!

 I missed the OPs about this but glad you (she) are getting the help that is needed.

 

KrisBriMcBunny

They worked with her & observed her for a little over 2 hours.  Plus the same pedi worked on Michelle in the NICU so he's familiar with her case.

JOEBunny

I am afraid of what they would say about my kid!  My DD I would definitely describe as having "a restricted eating pattern and sensitivies to textures on her hands and mouth." 

It sounds like they feel like they can do a lot to help her, so that is good.

Where does the OCD disorder diagnosis come from?   I would not think that a girl who can smile with that much ice cream on her face could be seriously OCD :-)  

I am sorry you have to go through this.  It is frustrating.  DD has different problems, mostly related to food and weight.  I hate the stupid "diagnosises" especially "failure to thrive" they keep slapping her with. 

KeML

I'm sorry.  That is a lot of info to take in, for sure.  Everything will work out for the best and it sounds like you'll get a lot of support and resources for Michelle.

stacynikki

That's all very overwhelming.  Take a few days to let it sink in and keep reminding yourself that it's good that you are getting it taken care of this early!  Good luck and go give your DD a big hug!

AWD

After reading my post that may of seemed snarky. It was NOT meant to be AT ALL. I just think about how DS is around strangers and they would probably diagnosis him with speech delay, OCD etc.. b/c he doesn't act like himself as much in strange places or around people he doesn't know well. You would think they would want to be around a child several times before telling parents everything and having them worry.

shopgirl78

(((HUGS)))

KrisBriMcBunny

AWD....I didnt think you were snarky...I honestly would have thought the same thing.  I've been talking to our own pedi and the developmental pedi about certain behaviors that she had.  This has been ongoing for awhile and I honestly chalked it up to just her being quirky. 

I'm hoping that all the different people who are gonna work with Michelle can put things in a better perspective for us and not make things sound much worst than it is.

kittycarr

Just keep saying that -  it's fixable and manageable.  You'll get through this like everything else.  You're one tough broad!!

DandelionMom

?fixable and managable

Honestly that is one of the best things a mom can hear.?

I know you know this but it helped me to hear it when Julia was diagnosed. ?This diagnosis only means that everyone now knows the best way to help Michelle. ?This doesn't change who Michelle is. ?She's still the awesome, sweet, little girl with a big attitude. ? ?

?(((hugs)))?

jaredswife

At least you know now what is going on and you can move forward.

Can I ask how old she is and how much she talks???

springfallwed

Big, big hugs. Agreed, that's a lot to take in at one time. And, as the other pp's have said, fixable & managable. Plus, you'll know now the best way to help her and she'll be getting all kinds of support. Again, ((HUGS))

xbrooklyngrl

BIG huge hugs. Ditto what most said, it's a lot to take in but once the shock wears off, you'll be ok.

rach&jay

Wow, that's so much to handle so quickly.  But as everyone has already written, it is fixable and managable.  It sounds like your pedi is on top of things and hopefully you will get a good team to help work with her. 

Hang in there.

crazynervous

Wow! That is a lot to take in!  I am sure once they start services it won't seem as daunting.  Good luck.

Sulla

I'm sorry Kristie. Just try to keep thinking positive like you are...try to remember that this is so much better than not knowing because now you can get her on the path to getting better. Hang in there.

#6

Ditto to what Dande said.  She is still the same little girl, now you know what is going and and how to help her.    I know it must still be hard.  We all hope our kids are perfectly healthy in every aspect and to have something be wrong/different is hard to deal with, handle, accept. 

Good Luck and I hope it all works out and you can start with the therapy.