Cincinnati Babies

XP: Mastocytosis?

Hi all! 

My son was diagnosed with Mastocytosis about a month after he was born.   Below is a definition of mastocytosis from www.mastokids.org:

"Mastocytosis is a rare disease whose cause remains unknown. What we do know is that the disease is the result of an overabundance of mast cells that are found normally within every human being's body tissues. Mast cells contain chemicals that are released into our systems to perform their various duties. In mastocytosis, the excessive number of mast cells release more of these chemicals than the body requires. The symptoms of mastocytosis are caused by the excessive amounts of chemicals interacting with body tissue."

Anyway, I was just wondering if anyone here has a child with Masto??

Thanks and TGIF!

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Re: XP: Mastocytosis?

  • My DS doesn't have masto but has a different rare genetic disorder. I know there are a few other moms on here that also have kids with special medical needs-- while they aren't the same conditions its nice to have support from moms who understand all the extra "stuff" (medical, emotional, etc.) that can come along with a diagnosis. Just wanted to let you know we are here if you ever need support!
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