Update on the Good and the Bad...

caitdana

The pedi found where they had in fact re-tested Sophia and just did not tell us because it came in the day we found out about Ella's heart condition. The pedi did not see the retest on the state website last night and appologized for the extra stress but the 1st test was a false positive. That is the good. The bad is that they are still not gaining weight like they should. We are 5.5 months old and weigh 8 lbs and 10 lb 4 oz and not consistantly gaining.  So, they are talking about added a feeding specialist to our long list of specialist who see the girls.  We have dieticians, cardiologist, pulmonologists, hearing (ella failed her hearing tests), vision, NICU Follow Ups, GI, and now they want 1 more dr for us to see. I am greatful but I am wore out dragging 2 babies around town to every dr's office in america also my job and family have been helpful but how much can you ask for?

lemen99

hugs!!