Hematologist (worms & others with experience come in!)

07may07

I've had RPL testing and nothing showed up.  They have found nothing wrong with my blood work.  I have no reason to think there is something wrong.

But, since there is nothing they can find wrong, I'm almost desperate to find something.  Is it worth having a consult with a hematologist if none of my tests indicate there is a problem?

I know it's a rather silly question. 

hollymichael

I see a hematologist for another condition I have and I asked her about my RPL results which found MTHFR, borderline protein C deficiency, and borderline high APAs. Honestly, I didn't find her all that helpful on those issues, but I don't get the sense that she really deals with a lot of RPL. If you do decide to see someone, then I would make sure you find a hematologist who specializes in RPL.

smeyer

I had a consult with a hematologist for my homozygous Factor V Leiden and hetero MTHFR.  (Both showed up on my RPL panel and my OB and peri wanted to make sure I had a long-term plan in plan for managing both.)  During my consult, the dr didn't draw blood or anything.  He was comfortable with the information/results he got from me, so our discussion was based upon the results I already had.  In your case, I don't really think it would be helpful.  I doubt a hematologist is would run new tests and he/she can't help manage a condition that you (very luckily!) don't have.  If you had a clotting or bleeding issue then yes, a consult might be helpful.

I totally understand your frustration and desire to find an answer.  In my case, none of the 3 drs thought that my clotting issues played any role in all of our losses.  I was repeatedly told that they were "bad luck" (the pgs we tested were all unexplained chromosomal problems).  Still, my team wanted to make sure I never have a clot or DVT at some point later in life.  

I wish I had some words of advice or suggestions for you.  IF just plain old sucks.    ((hugs))

 

JnA2009

Have you had a lap? 

All of my rpl b/w was normal as well (incl genetic b/w), hsg- normal, hyst- normal.  P4 has always been low in unmedicated cycles though so likely issues with follicular phase.  After 6 natural cycle m/c's I had a lap bc the estrogen patches they rx'd me to prep for a biopsy caused awful pain that mimicked my pre-af pain and they found endo on both ovaries and uterus.  It's controversial whether or not endo is a cause of rpl/m/c's, but women with endo are often missing certain endometrial proteins necessary for the implantation process and also have compromised fertilization. 

Here's a great article on rpl-  

https://molehr.oxfordjournals.org/content/early/2010/09/17/molehr.gaq079.full.pdf

articles on beta-3 integrin and endo/rpl 

https://scholar.google.com/scholar?hl=en&q=beta+3+integrin+and+recurrent+miscarriage&as_sdt=0%2C10&as_ylo=&as_vis=0

https://scholar.google.com/scholar?hl=en&q=beta+3+integrin+and+endometriosis&as_sdt=0%2C10&as_ylo=&as_vis=0

 

emca

I saw a hematologist forever ago, after my 2nd miscarriage.  She took more bloodwork of her own and still did not find anything.  She did run a few tests that my ob/gyn did not, but all in all, I did not find it helpful.  She did not think that MTHFR had anything to do with my losses, and she didn't find anything else.  I agree with the previous poster that maybe you should find one that specializes in RPL.  Sorry I was no help. Good Luck!

theworms

Did you have clotting bloodwork done with your RPL?  If you haven't I would request it.

If you have clotting disorders than I would see a Hema but w/o them, there is no reason to.

If you want answers and have ruled out all the traditional ones I would look into immune testing.

https://www.reproductiveimmunology.com/