I wanted to respond to your post and really wanted to make sure you saw this.
I am currently carrying a baby who had a cystic hygroma (nuchal fold measuring almost 9 mm!)discovered around 12 weeks, had a CVS, and the karyotype was perfectly normal.
Granted, Isaac has numerous anomalies, and he is not supposed to make it.
BUT, I will tell you this... the cystic hygroma is gone. His heart is perfect. His brain is perfect. His anomalies all stem from an omphalocele (abdominal hernia) which caused a whole chain reaction of other issues.
Like I said, though, the cystic hygroma is gone, his heart is perfect, he never developed hydrops or anything, etc.
I also recommend checking out www.benotafraid.net There are lots of stories on there of parents whose children were diagnosed with a cystic hygroma and are fine.
A cystic hygroma can sometimes have an associated heart defect, but the percentages we were given were less than 50%. Also, many, many congenital heart defects can be treated.
I am sure they haven't sent you for a fetal echocardiogram yet because you're still early and they wouldn't be able to see much. I am assuming they will though.
I just wanted to encourage you that a cystic hygroma is not a death sentence for your baby. Quite the contrary. Doctors will often present this in a very grim way, suggest termination, etc. But please know there is HOPE... both from a medical standpoint (trust me, we did a ton of research on this, met with genetic counselors numerous times...), and from a faith standpoint as well.
Please, please, please e-mail me any time. I woudl love to connect with you and encourage you in this. My e-mail is coolteacher79 at yahoo.com