It's official - 2nd miscarriage in a row.

Bee101

I got the final word from my doctor today.  I haven't started miscarrying but my beta dropped and I had a negative test yesterday.  I'm grateful to have some sort of "closure" but this is just so hard.  I'm really having a tough time and I don't know what to do.  

We have a dr. appt to follow up set for next month.  Can any of you tell me what to expect?  Will they do testing?  I think i'm still in shock and I just wish so much it wasn't true.   

 

MrsR25

I had RPL testing (Recurrent Pregnancy Loss) done after my 2nd m/c. A lot of doctors wait to do any testing until you have a 3rd miscarriage.

The RPL testing was all I had done and if I have a 3rd m/c then I get referred to a specialist.

They might do an u/s at your appointment to check everything out.

Bee101

MrsR25:

I had RPL testing (Recurrent Pregnancy Loss) done after my 2nd m/c. A lot of doctors wait to do any testing until you have a 3rd miscarriage.

The RPL testing was all I had done and if I have a 3rd m/c then I get referred to a specialist.

They might do an u/s at your appointment to check everything out.

 

I'm sorry for your losses.  Did they seem to think that it was just really bad luck or do they start to think at after two that something might be wrong? 

Bee101

MrsR25:

I had RPL testing (Recurrent Pregnancy Loss) done after my 2nd m/c. A lot of doctors wait to do any testing until you have a 3rd miscarriage.

The RPL testing was all I had done and if I have a 3rd m/c then I get referred to a specialist.

They might do an u/s at your appointment to check everything out.

 

I'm sorry for your losses.  Did they seem to think that it was just really bad luck or do they start to think at after two that something might be wrong? 

baloneydisc

I had a clotting panel done after my second m/c.  I really had to push my OB to do it, her opinion is that since 25% of pregnancies end in m/c I shouldn't be concerned about it & she did not want to run any tests until my 3rd m/c.  3 is the magic number for most doctors, so don't be surprised if your doctor doesn't recommend any testing.

Jenn478

I am sorry for both of your losses.

kimmiekp

As everyone says, three seems to be the number they wait for before they are willing to label you as having recurrent miscarriages. However, that being said, I, like the other women on here, received testing after 2. They tested for RH, they tested for clotting disorder, and they gave me an U/S to look at my ovaries and they looked good. All of my testing came out clean so the doctor said after having 3 your chances of having another are slim, but he scheduled my for a hysteroscopy which is essentially like a colonoscopy where they take a really thin camera into the uterus and look around to make sure there is no scarring or cysts that would cause problems with implantation. This also came out clean. He said, while there is no proof positive that progesterone works or if it's just "luck" that some women go on to have healthy pregnancies once they go on it, so he told me to start progesterone with my next miscarriage but with my 4th I miscarried really early before progesterone started. I'm on my 5th miscarriage after hearing a heartbeat at around 6 weeks, then no heart beat when I went in at 11 weeks. I have now been referred to a specialist. Here's the thing - I am a strange case... There appears to be nothing wrong but I can't seem to hold a pregnancy. Most women at least have something that they can diagnose and treat and go on to carry a healthy baby. My sister in law had 3 miscarriages before her first (she was put on progesterone and baby aspirin) my girlfriend had two miscarriages before having a beautiful baby boy. The point is, miscarriages are SO common and there probably is nothing wrong, just a chromosomal issue and your next pregnancy will go off without a hitch. Don't give up hope. And if your doctor isn't willing to test you now, don't assume that you're going to have another miscarriage. No two pregnancies are alike and having a miscarriage does not make you prone for another. Hopefully this helps - I tend to ramble lol

MBL105

kimmiekp:

As everyone says, three seems to be the number they wait for before they are willing to label you as having recurrent miscarriages. However, that being said, I, like the other women on here, received testing after 2. They tested for RH, they tested for clotting disorder, and they gave me an U/S to look at my ovaries and they looked good. All of my testing came out clean so the doctor said after having 3 your chances of having another are slim, but he scheduled my for a hysteroscopy which is essentially like a colonoscopy where they take a really thin camera into the uterus and look around to make sure there is no scarring or cysts that would cause problems with implantation. This also came out clean. He said, while there is no proof positive that progesterone works or if it's just "luck" that some women go on to have healthy pregnancies once they go on it, so he told me to start progesterone with my next miscarriage but with my 4th I miscarried really early before progesterone started. I'm on my 5th miscarriage after hearing a heartbeat at around 6 weeks, then no heart beat when I went in at 11 weeks. I have now been referred to a specialist. Here's the thing - I am a strange case... There appears to be nothing wrong but I can't seem to hold a pregnancy. Most women at least have something that they can diagnose and treat and go on to carry a healthy baby. My sister in law had 3 miscarriages before her first (she was put on progesterone and baby aspirin) my girlfriend had two miscarriages before having a beautiful baby boy. The point is, miscarriages are SO common and there probably is nothing wrong, just a chromosomal issue and your next pregnancy will go off without a hitch. Don't give up hope. And if your doctor isn't willing to test you now, don't assume that you're going to have another miscarriage. No two pregnancies are alike and having a miscarriage does not make you prone for another. Hopefully this helps - I tend to ramble lol

Hello! Our stories are similar.  If you don't mind, what part of NC are you in? I am in NC too. I am also on my 5th miscarriage.  1 ectopic, 2 spontaneous one at 6 weeks and one at 9, and 2 that died in side my body.  One at 14 weeks, discovered at 16 weeks and today at 11.5 weeks, looking like it died at 10 weeks.

The ectopic they consider a fluke.  The 6 wk loss they think oh that happens to about 25% of pregnancies and since it happened on the day of my confirmation they didn't seem to really count that one. Then the 16 week loss, they said it was probably genetic, but genetic testing came back fine. The 9 week loss, they were sympathetic and great, but I had to ask them - when do you start testing to find out what's wrong with me?  He said normally after 3 or 4.  When I pointed them all out and told him I'd done some digging on the internet and read about progesterone and blood clotting disorders he said they could only test the progesterone during early pregnancy and they did find that I had Hyperhomocysteinemia. So I take a daily aspirin.  Then I expirienced secondary infertilty. When to a fertiltiy clinic and got pregnant after 3 months. they proactively use progesterone there until I was just about 9 weeks. But to my surprise did not recommend I see a perinatologist or take anything other than the baby aspirin for the blood clotting.  Today I discover this baby has also died.

So now I want answers and I wasnt given any. I wasn't given any hope or answers or better outcome either. What do I do now?  I have two children aged 9 & 11 from a previous life as I like to call it. 

MBL105

Bee101:

I got the final word from my doctor today.  I haven't started miscarrying but my beta dropped and I had a negative test yesterday.  I'm grateful to have some sort of "closure" but this is just so hard.  I'm really having a tough time and I don't know what to do.  

We have a dr. appt to follow up set for next month.  Can any of you tell me what to expect?  Will they do testing?  I think i'm still in shock and I just wish so much it wasn't true.   

 

I am so very sorry for your loss.  All I can tell you is that you have come to the right place for support and comfort.  I wish it wasn't true for you either.  I know your pain.  I too found out today that I am loosing my 5th pregnancy in a row.  I just feel hopeless.  I know you do too and you just have to let yourself feel whatever comes next, anger, bitterness, frustration... but I can promise you that you can feel strength again and that you will in fact be a stronger person than you ever wanted to be.

I wish you the best, I am so sorry.

kimmiekp

MBL105:

kimmiekp:

As everyone says, three seems to be the number they wait for before they are willing to label you as having recurrent miscarriages. However, that being said, I, like the other women on here, received testing after 2. They tested for RH, they tested for clotting disorder, and they gave me an U/S to look at my ovaries and they looked good. All of my testing came out clean so the doctor said after having 3 your chances of having another are slim, but he scheduled my for a hysteroscopy which is essentially like a colonoscopy where they take a really thin camera into the uterus and look around to make sure there is no scarring or cysts that would cause problems with implantation. This also came out clean. He said, while there is no proof positive that progesterone works or if it's just "luck" that some women go on to have healthy pregnancies once they go on it, so he told me to start progesterone with my next miscarriage but with my 4th I miscarried really early before progesterone started. I'm on my 5th miscarriage after hearing a heartbeat at around 6 weeks, then no heart beat when I went in at 11 weeks. I have now been referred to a specialist. Here's the thing - I am a strange case... There appears to be nothing wrong but I can't seem to hold a pregnancy. Most women at least have something that they can diagnose and treat and go on to carry a healthy baby. My sister in law had 3 miscarriages before her first (she was put on progesterone and baby aspirin) my girlfriend had two miscarriages before having a beautiful baby boy. The point is, miscarriages are SO common and there probably is nothing wrong, just a chromosomal issue and your next pregnancy will go off without a hitch. Don't give up hope. And if your doctor isn't willing to test you now, don't assume that you're going to have another miscarriage. No two pregnancies are alike and having a miscarriage does not make you prone for another. Hopefully this helps - I tend to ramble lol

Hello! Our stories are similar.  If you don't mind, what part of NC are you in? I am in NC too. I am also on my 5th miscarriage.  1 ectopic, 2 spontaneous one at 6 weeks and one at 9, and 2 that died in side my body.  One at 14 weeks, discovered at 16 weeks and today at 11.5 weeks, looking like it died at 10 weeks.

The ectopic they consider a fluke.  The 6 wk loss they think oh that happens to about 25% of pregnancies and since it happened on the day of my confirmation they didn't seem to really count that one. Then the 16 week loss, they said it was probably genetic, but genetic testing came back fine. The 9 week loss, they were sympathetic and great, but I had to ask them - when do you start testing to find out what's wrong with me?  He said normally after 3 or 4.  When I pointed them all out and told him I'd done some digging on the internet and read about progesterone and blood clotting disorders he said they could only test the progesterone during early pregnancy and they did find that I had Hyperhomocysteinemia. So I take a daily aspirin.  Then I expirienced secondary infertilty. When to a fertiltiy clinic and got pregnant after 3 months. they proactively use progesterone there until I was just about 9 weeks. But to my surprise did not recommend I see a perinatologist or take anything other than the baby aspirin for the blood clotting.  Today I discover this baby has also died.

So now I want answers and I wasnt given any. I wasn't given any hope or answers or better outcome either. What do I do now?  I have two children aged 9 & 11 from a previous life as I like to call it. 

Well the good thing with me is the doc started looking right away at things and made sure I didn't have the blood clotting thing (which I think is what you said you do have). He slowly checked other things after other losses. I'm not over all happy with the care I was getting at my OB.  Like you said, they can check progesterone at early pregnancy and never tested, they just put me on it 'in case' it might work.  In fact, when I went in for my U/S I was like... aren't you supposed to do a blood panel on me (the standard that they do for ALL pregnancies) and they were like, "Oh we didn't do that yet?" So they took all my blood (before the U/S unfortunately) and sent it off to the lab. I haven't heard anything about any of that, not that it matters now because the pregnancy had ceased (a "missed miscarriage" because I had a miscarriage but hadn't started bleeding yet).  My doctor can't figure ANYTHING wrong with me... he kind of threw his hands up in the air just not able to find out what is going on other than to say "something is going on, I just don't know what it is".   Enter the "specialist" that he's going to send me to. He told me that she'll probably run a lot of the same tests, and that she'll probably put me on a blood thinner even though I didn't test for the clotting disorder.  I swear I'm at the point where I think it's all a bunch of guesswork. I really just want answers. I wish I could tell you more than what I've got... but that's pretty much it. If you're not getting good results from your OB you may wish to look elsewhere.  I wish you nothing but the best (the same for all of us) feel free to PM me if you want to talk further. Oh and i"m at Ft. Bragg.

MrsR25

kimmiekp:

As everyone says, three seems to be the number they wait for before they are willing to label you as having recurrent miscarriages. However, that being said, I, like the other women on here, received testing after 2. They tested for RH, they tested for clotting disorder, and they gave me an U/S to look at my ovaries and they looked good. All of my testing came out clean so the doctor said after having 3 your chances of having another are slim, but he scheduled my for a hysteroscopy which is essentially like a colonoscopy where they take a really thin camera into the uterus and look around to make sure there is no scarring or cysts that would cause problems with implantation. This also came out clean. He said, while there is no proof positive that progesterone works or if it's just "luck" that some women go on to have healthy pregnancies once they go on it, so he told me to start progesterone with my next miscarriage but with my 4th I miscarried really early before progesterone started. I'm on my 5th miscarriage after hearing a heartbeat at around 6 weeks, then no heart beat when I went in at 11 weeks. I have now been referred to a specialist. Here's the thing - I am a strange case... There appears to be nothing wrong but I can't seem to hold a pregnancy. Most women at least have something that they can diagnose and treat and go on to carry a healthy baby. My sister in law had 3 miscarriages before her first (she was put on progesterone and baby aspirin) my girlfriend had two miscarriages before having a beautiful baby boy. The point is, miscarriages are SO common and there probably is nothing wrong, just a chromosomal issue and your next pregnancy will go off without a hitch. Don't give up hope. And if your doctor isn't willing to test you now, don't assume that you're going to have another miscarriage. No two pregnancies are alike and having a miscarriage does not make you prone for another. Hopefully this helps - I tend to ramble lol

Both my OB and the OB that I talked to after my 2nd u/s with my 2nd m/c said the same thing about the progesterone not being proven to work (but it isn't proven to hurt so its not bad to be on it). I'm going to insist that they put me on it with my next pregnancy just to be safe though.

To answer the OP's previous question to me, my OB just thinks its bad luck since all my testing came back normal. I guess we'll see what happens when I get pregnant again.

dbrym1

I am so very sorry for your loss.  Like previous posters, I also had two m/c's in a row - September and November.  And I know how devastating it is.

After my second loss, my OB wrote me orders for the RPL which we will be doing in January.  I don't, however, anticipate to find much out.  For those of you whose RPLs came back with no news - maybe this will help.  But please know, I do not, in any way, mean to come off as negative or with little hope.  I know first hand that hope is all we have.

My sister had two healthy pregnancies at age 27 and 29.  At 31, she had her first m/c and thought it was "one of those things".  And then she had another.  And another.  All were around 5 weeks.  She went through all of the tests, nothing showed up, everything seemed normal.  She and her husband began treatment  and decided to go through IVF.  After her retrieval and fertilization, they discovered that she had serious problems with the quality of her eggs.  The Day 3 tests will look at how many eggs you have but you cannot really get an idea of the actual quality absent a retrieval.  She had 18 eggs retrieved, 15 fertilized, and of those, only 35% were healthy.  They paid extra for preimplantation genetic screening - without this, the doctors would have most likely implanted what ended up being unhealthy eggs.  The embryologist told her that what appeared to be the healthiest embryos at first had such severe genetic defects, they could not even determine the gender. Without the PGD, they would have implanted those. 

Again, I do not want to come off as negative - I know how scary multiple m/c's can be.   We want answers and we want a way to fix whatever is wrong.  Unfortunately, the tests that our doctors can offer may not provide answers.  My sister is actually a success story too - she got two very healthy and adorable babies from their very first IVF.  There is also a possibility that they could have continued to try on their own and chances are they would have eventually conceived with a healthy egg. 

I am not, in any way, trying to imply that this is what is going on with you or anybody else on the board.  This is just another story of loss.  I tell it only as a possible answer for those who do not get them from the RPL or other tests.

alyss0nl

I can't even imagine the loss you must be feeling.  Unfortunately, miscarriage runs in my family.  My mom's first pregnancy ended in miscarriage at 4 months, and my grandmother had 3 before having her last child. 

It's always a worry in the back of my mind, but knowing I will have support if ever it happens is valuable.