i can see the light

stephanie073

Today was full of ups and downs in the NICU, not just for Jocelyn but for her neighbor triplets Jack, Ava and Parker. Jack passed away despite the team's best efforts to save him. It was just too much. Parker and Ava still continue to fight their little hearts out and are doing as well as they can. 

I went to a moms group today as well.... figured  it would help keep me positive to hear what great things other little kids were doing. But that failed as bad as failing can be. One mom was saying "how blessed I should feel because I have 24/7 babysitters because my baby is in the NICU." Then she continued to say that "diapers are sooooo expensive and I just don't know how I'll afford it for much longer." In the back of mind all I could think of  was "honey, if only you knew that your diapers that are soooooo expensive are sooooooo not compared to the NICU bills." I bit my tongue and just smiled. It's all good....just thought it was unique. One of the other moms apologized and said I must have felt out of place. Nope! It's all good! But I'm not going back to it.

Jocelyn had a pretty good day. She's still iffy with her temperature but she's doing better. They say she MIGHT come home for Christmas but we'll have to be very mindful of the parties and get-togethers. Hope all is well with you!

jcsntms06

I'm sorry to hear about Jocelyn's NICU neighbors. It sounds like Jocelyn is doing well and if she can just maintain her temps she can come home. Keep up the good work.

Edit:I see that your in Maryland,  What hospital did you deliver at? Not sure if you know this or not, but we have a Baltimore Baby Bump board, you might like to check out. 

FisMom

I had a very good friend tell me, while DD was in the NICU, that at least I had down time to spend alone with my husband. I said, "Really, would you be willing to trade places with me?" You can bet she said no. I told her that nothing was a consolation for having a baby in the hospital. No one in my mom's group has ever made me feel out of place. It was always the friends who I was close with that said the tacky things.

Amanda705

Wow you are amazing for actually going to a Mom's group.  I still can hardly bring myself to look at pregnant women.

At1stsight

I'm so sorry to hear about Jocelyn's neighbors. T&Ps for that family.

In general, moms of non-preemies will not really understand how you're feeling or what you're going through. Several may say things like "you're lucky to get all that extra sleep right now" - I was really upset when I was told to be grateful for that. No, I was NOT sleeping, thank you; I was getting up pumping every 2-3 hrs and worrying about my baby all night.

Hope Jocelyn keeps that temp up and gets out before Christmas!

stephanie073

We're at Anne Arundel. It's a little better than the other hospital close to us. I was told going to a moms group would help me later....I guess it did. It made me realize that if I go to another group and someone else there has a baby in the NICU I'm not going to be acting like I have a stick up my butt to them!