Kind of in Kitty's boat tonight
DH and I both feel very strongly that Isabel has autism. If it's not autism, it's something and we just want to know something, now. With that said I keep dragging my feet on making her an appointment. I've tried to get her into the best center in Atlanta but the Drs don't take our insurance so I'm having to figure out if we can switch plans so she can see these Drs.
There are many reason we feel something is wrong (that's the part I don't feel like getting into again right now). I'm so tired of people who don't know me, dh and our daughter saying there is nothing wrong with her! They are not home with her they do not deal with her, we do. If I hear one more person tell me they know somebody, who knows somebody, who's cousins best friends kid did not talk till they were ::insert age:: I'm going to scream! Just and fyi, the talking (lack there of) is not our only reason for concern. Inside I want to cry but the tears are not coming out.
I have felt something was wrong for a long time now. About a month ago her speech therapist suggested we have her seen by developmental psychologist or a pediatric neuropsychologist.
Anyway, that was a very long way of saying could also use a little hug too. If you made it this far you are pretty awesome (or bored)!
Re: Kind of in Kitty's boat tonight
I think about your situation often. I remember one of the first times you mentioned your husband's concerns about autism (I think you were still hoping there were some hearing issues). I'm so sorry you are going through this. I hope you can get her in and get some answers soon.
I'll continue to keep you all in my thoughts and I am praying there is good news to be heard. Hang in there.
m/c August 2007 - Blighted Ovum
Sean - Our IUI/Injectable miracle born Oct. 5, 2008.
Liam - Our second miracle born July 16, 2010
It is so hard to think or admit that there may be something " less than perfect" about our children. You know her, you know your gut. Keep going until you get your answers. do what you have to do. I am sorry you are dealing with this, and feeling this way.
Huge hugs to both you and Kitty tonight!
I am so sorry you dealing with this!
I am going to message you
Married 8.13.2005, M/C 12/8/06- 5 weeks, M/C 2/27/07- 7 weeks, M/C w/ D&C 8/10/09-6.5 weeks *Charles Lawrence born 5/2/08 @ 3:14am, 7lb 8oz, 20.5 inches. Clomid, Crinone and baby aspirin. *Alexandra Claire born 9/14/10 @ 9:52am 6lb 14oz, 20.5 inches. Femara, Crinone and baby aspirin.
Clomid M/C 8 weeks 2/08 *IVF #1-DD born 3/09
*Surprise BFP-T18 baby lost at 13w 1/10 *FET #1-DS born 2/11
I am so sorry, I can't imagine how hard it is to know in your gut that something is wrong and not feel heard.
In your place, I might take Isabel to see someone who is not the "best" while waiting to be seen at the place that is. I hope you can start getting some answers soon.
m/c August 2007 - Blighted Ovum
Sean - Our IUI/Injectable miracle born Oct. 5, 2008.
Liam - Our second miracle born July 16, 2010
((((hugs)))) I hope you get some answers soon. I hope that she does not have autism, but *if* she does there's a lot of hope that therapy can really help her a lot.
And I'm not going to tell you she doesn't have autism, but from the photos you post here and on facebook I would say that if she does have it it doesn't appear to be a severe form. She looks happy. She looks like she enjoys interacting with you.
I feel for you because you know I've worried about this with James, too, and while his language skills are improving there are still behaviors that concern me. DH thinks I am paranoid, but I've felt that something was off with James from the beginning, and I don't feel that way about Ben. But in any case, the worrying has caused so much stress and anxiety, especially since this is not the kind of thing they can just do a quick test for and diagnose. Not sure where I'm going with this, but my thoughts are with you. I hope you get some answers soon-- whatever the results, it will help you get the best therapies for Isabel.
Many hugs sent your way!! I'm so sorry that you're dealing with this! Definitely try to get some answers so you can move forward. Talk to her speech therapist (if you haven't already) about getting an evaluation through the school district.
You know your little girl better than anyone, so continue to follow those mommy instincts. No matter what, she is an amazing and beautiful little girl! Autism or any other diagnosis can't change that!! Just keep reminding yourself of that.
Joey, Ronnie, and Audrey,
my awesome IUI 30 week twins, and my surprise miracle
LOVE my SAIF ladies
{{hugs}} I hope you can get some answers soon! That has to be very frustrating!
more {{hugs}}
Savannah
Callista
Baby Trail Blog
"Someday we will look at our babies and know it will be worth it. If it was easy, we would not have had our babies, the babies we were meant to have." From Amy052006
I'm so sorry that you're fearing that your lovely little girl has autism. You're her parents and you know what is best for you and for her and for your family.
I do hope that you get some help for her. And for you. Dealing with the process of figuring out what is going on with her can be very taxing on you.
I used to work at a hospital for kids with developmental disabilities and they had an affiliate in Atlanta. Its called the Marcus Autism Center - founded by Bernie Marcus. Not sure if that's the place you're trying to get into - but I think they do great work!
I am so sorry you're going through this, hon. ((((hugs))))
My 2 nephews are autistic. Its a tough pill to swallow and a lot of us were in denial about it for a long time. (both were diagnosed by age 2) The best thing you can do for your girl is to get the therapies that she needs, which it sounds like you are working on.
If you ever need to 'talk' feel free to pm me. I've seen my sister cry many tears, celebrate many milestones and helped answer questions about the boys' therapies (i'm an occupational therapist).
Lots of hugs to you and your sweet girl.
I am so sorry you are going though this!! I hope you can get some answers soon.
Thank you so much for the thoughts, prayers and hugs. It really means a lot. My girl always has been and always will be perfect but to know that something is going on is breaking my heart. DH & I would love to be wrong about this.
nicolita14w- I know you have also had a lot of concerns about James, how is that going? I think about you guys a lot. DH and I do feel it is not severe but there does seem to be something going on. I behavior is a big reason for our concern.
charmcitygirl- YES, Marcus Autism Center is exactly where we trying to get her into. I've heard great things about it and people come from all over to go there. I live 20 minutes away from the center and my stupid insurance it causing me to jump through hoops to get in there!
***Twin fraternal girls born at 35w6d in 12/2008***
I've been think about you and DD. I can't imagine the 'tug o war' that's going on inside between your heart and mind. Trust your gut and ignore ppl.
(((((((((((((((((((((((((((((hugs)))))))))))))))))))))))))))))))))))))))
You'll be in my thoughts and prayers.
Oh honey...what a tough, tough thing. I hope you get some answers very, very soon.
(((Hugs)))
My son is on the spectrum. We've known for almost a year now and although it still stings I have to say it will get better. You can also see a developmental pediatrician. I urge you to post on the SN board any questions you may have. If you want to talk I'll listen. ((HUGS)).
Ditto what here4u said - can you get early intervention to help you while you wait to get into the center you want?
Also ditto what nikolita said. I have had worries about Trig since he was born that I just don't have with Grayson. We're trying to figure out if it is autism spectrum disorder, cystic fibrosis, or what. Things are just slowly coming out but he is really developmentally and physically delayed. Anyway I know how frustrating and scary it can be. Sending big hugs and I hope you get some help and answers soon.
After 2 rounds of IVF & 2 rounds of FET, we were blessed with identical twin girls!
I'm so sorry you're going through this. It's so hard to face the possibillity that something may be atypical with your child or their development. I think you are so brave and have my utmost respect for reaching out. A parent's intution is usually right on, and since you are your child's best advocate, I think best thing you can do is keep pushing for testing and/or treatment if needed. Keep searching until someone truly acknowledges your concerns. Have you talked with anyone on the special needs board? Just wondering if someone who has some experience could give you some direction.
I work in rehab (not peds, unfortunately) but I have a lot of friends that do and have seen some awesome progress with early treatment. The earlier, the better. Sending huge hugs your way and know that we are here for you to vent, cry, cheer you up--whatever you need. This is tuff stuff, mama.