Preemies
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I feel all alone, even on here

I have been searching for ANYONE else who had Rh complications during their pregnancy and haven't found a single person. I know it's really rare since the shot is supposed to work, but I have searched everyone online it seems.I have found a couple of people on a crunchy parenting board, but those were all moms that refused the shot, which makes me want to jump through the computer and punch them. I got the shots just like I was supposed to and I am so frustrated, confused, angry as to why this all happened when I did all the right things.

I am envious in a way that you can all find someone else that went through the same thing as you.

That is all. Vent over :-

 

 

Mom to 2 beautiful girls, 3 yrs and 22 months old. My 2nd was born at 32 weeks due to Rhogam failure/severe complications from Rh disease and is our miracle. She has bilateral auditory neuropathy and a cochlear implant, activated 4/5/2012 at 19 months. Lilypie First Birthday tickers

Re: I feel all alone, even on here

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    Even though my DD was not born because of Rh factor complications, she was a little earlier than yours. You still have a lot in common with us on this board because you've been through the NICU wringer.

    I don't think anyone here had a preemie because of fetal bradycardia, but I do not feel alone. I don't know if your baby is home yet, but once she does come home, her reason for prematurity will matter a lot less. Please do not feel alone. We all have unique situations but we have more in common because of our experiences.

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    I am sorry you are feeling alone.  I know that even though there are others here that had hellp I sometimes felt very isolated as well.  While we can't provide support about the causes of the prematurity I can say that many of our feelings and emotions about the birth and nicu stay of our babies are similar regardless of why we got there.  I dealt with and am still dealing with the guilt of me being the cause of E's prematurity and played out how I could of avoided the outcome we had if I had been more vigilant or had gone to the doctor earlier.  Eventually I got to a point of acceptance.  I don't like how it all went down but it is our story and I am ok with it now.  Hugs.  The whole thing sucks no matter what caused it.
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    I can understand how you feel. I am still trying to deal with what happened (he's 5 months now) to our LO and it is frustrating that all I can find are case studies that discuss the severe situations of my rare condition.

    I had a placental chorioangioma that ruptured and it wasn't discovered until I noticed LO wasn't moving at 36wks. 

    I feel like I am going through stages of grieving and currently, I am in the anger phase because I want to know "how did it go undected"/why didn't the drs know/what ifs about his future complications...etc.  

    however, I am trying to stay positive and am gratedul for each day. you arent alone 

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    I'm sorry you feel this way. I hope you find someone that you feel understands what you're going through. 

    I can, however, relate to doing all the right things, and yet things went so wrong. :/

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    I'm sorry that you feel alone. I feel that way myself a lot of the time. While we might not completely understand your specific medical condition we certainly understand the pain/frustration/confusion that comes withh having a preemie. I hope you can take comfort in the fact that you have two beautiful babies, (judging by your siggy) regardless of the way they came into the world. Hang in there.
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    I'm sorry you feel that way. Try looking on the March of Dimes message boards:

    https://www.shareyourstory.org/webx/Share Home/Parent To Parent/

    There are a lot of diseases or complications that parents are dealing with that I never heard of before. Maybe you can connect with someone there.

    Abigail Noelle, 8.29.09
    Brady Phoenix, 8.29.09
    Claire Zoe, 10.26.10

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    imageSweets2005:

    I'm sorry you feel that way. Try looking on the March of Dimes message boards:

    https://www.shareyourstory.org/webx/Share Home/Parent To Parent/

    There are a lot of diseases or complications that parents are dealing with that I never heard of before. Maybe you can connect with someone there.

    thanks!

    Mom to 2 beautiful girls, 3 yrs and 22 months old. My 2nd was born at 32 weeks due to Rhogam failure/severe complications from Rh disease and is our miracle. She has bilateral auditory neuropathy and a cochlear implant, activated 4/5/2012 at 19 months. Lilypie First Birthday tickers
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    I still don't know why DD came early and never will.

    It's silly to say that I'd rather know, because I wish it wasn't an issue at all, but it's what we were dealt.  

    Please don't feel alone...we all have some common ground here.

    BFP(1) DD1 born 4.17.10 @ 33w5d due to pPROM
    BFP(4) DD2 born 2.14.13 @ 35w5d due to pPROM

    image
    Lilypie Third Birthday tickersLilypie Premature Baby tickers
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