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If your DC got hydrocephalus after birth...

SLM05SLM05
in Preemies
Please share your story if you don;t mind.  My Jonathan was just diagnosed on Monday with hydrocephalus that is communicating.  He does not have any other conditions that we know of at this point and we are unsure if it has already caused any damage or if/when he might be shunted.  We have our first meeting with the pedi nero Friday.   I am sick with worry can';t eat, can't sleep.  Life is hard enough as it is i would hate for him to have extra challenges.  If you have any information or can share anything please help a scared to heath mom.  Thanks!
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Re: If your DC got hydrocephalus after birth...

  • lemen99lemen99 member
    No, but many prayers to you and Jonathan.  I'm sorry!
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  • Dani816 Dani816
    not hydrocephalus but "large gyri." could be something, could be nothing. we have our pedi neuro appointment at the end of october. it is terrifying, so we try to just take things one day at a time and enjoy our girl. so far, she seems to be doing great, so we don't think too far beyond that.
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