Infertility

Does anyone have advice PLEASE!!

my fiance and i have been together for over 4 years with no success on conceiving. he has a terminal lung disease called cystic fibrosis which causes alot of problems. pardon the bluntness but there is little to no semen when he goes. i also have some severe problems as well hasnt been diagnosed yet but we are almost positive i have endometriosis. we dont want to adopt and we have no insurance and he is disabled and therefore cannot work luckily though he is on medicaid. i guess i am just wondering if there are ideas on anything maybe someone has heard to maybe help us out..any advice would be greatly appreciated...

Re: Does anyone have advice PLEASE!!

  • It varies so widely per person and couple.

    Truly the best advice is to go see an RE (Reproductive Endocrinologist).  They are the experts.  The only way to know what to do in each individual case is to see one.  Especially if you have a slow sperm issue as many of us do.  

    That's the best advice to give in your situation. I'd say about 95% on the board are currently going to one now. 

    My Story and Blog:
    The Conception Craze

    1/2009- TTTC
    After 7 rounds of clomid and HcG, Three failed IUI's with an ectopic pregnancy, two shots of methotrextate, ER visits, breaks, low (3%) morphology One IVF cycle (lupron, gonal-F) that ended in another ectopic, more methotrexate, A Lap to disconnect both tubes, remove endo and a hydrosalphinx, . . .we are finally expecting TWINS from FET#1!
    1.11. 2011: Beginning FET cycle!
    3.11.11- FET! (DH's birthday!) 2 blasts transfered!
    3.20.11- BETA #1 BFP!!! 272! (9dp5dt)
    3.23.11- BETA #2 1346!!! (12dp5dt)
    4.8.11- U/S #1. . TWINS!!! . . .TWO BOYS!
    9.10.11-My beautiful Boys arrive unexpectedly at 28 weeks, 6 days. imageimage
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  • I second what mrs. r said, and I wish you the best of luck. I am so sorry your husband has CF - i know that is a very difficult illness to manage. ((hugs))
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  • The RE is going to be able to give you the best answers as a diagnosis and a treatment!  One of my best friends has CF and I am so sorry your husband has it as well.  Best of luck to you.
  • Ditto to what pp said.  See an RE (reproductive endocrinologist) so he/she can diagnose you and your fiance and can then customize a treatment plan for you.  I'm sorry about your fiance's CF. I hope you get some answers.  Good luck.
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  • Has your fiance had a semen analysis? Depending on what that shows, you may be able to try a few IUI's. But you might need IVF with ICSI.

    Have you had Cystic Fibrosis testing? If you aren't a carrier, your children will carry the CF gene, but not have the disease. If you carry the gene, 50% of your children will have CF, so you may choose to do PGD.

    Good luck to you!

    Wedding Fall 2007 Off OCP's since 9/08-started with BBT charts Saw Ob/gyn May 2009 Blood work normal except single copy of MTHFR Clomid 50mg May 2009 Clomid 50mg + IUI June 2009 Femara 5mg + IUI July 2009 Normal HSG July 2009 Femara 5mg + ovidrel+IUI August 2009 Femara 5mg +ovidrel + IUI September 2009 November 2009-normal lap December 2009-met with RE December/January-Injectible med cycle with IUI-Abnormal sperm morpology found-only 0-1% normal All Head defects. Jan/Feb 2010 1st IVF with ICSI-5 week chemical pregnancy :( Feb 2010-male infertility doc says DH's anatomy and blood work are normal so nothing he can do. :( FET July 2010-BFP! Twin m/c @ 5.5 wks :( Dec/Jan 2011 IVF #2 Only 4 eggs retrieved-Ganirelix dose messed up BFFN Feb/March 2011 IVF #3 ER 3/9 9 eggs, 7 fertilized, ET 3/14, No frosties. BFN IVF #4 ER 8/22 9R,7F ET 8/25-3 embies, 1 frostie! Beta 9/2= 54, 9/6=274, 9/8=625, 9/12=2953, 9/16 greater than 10,000. B/G TWINS born April 2012 @ 36wks & 1 day! July 2014-going back for the frozen embryo! ET 7/28, heartbeat seen at 6wks1day with SCH. Miscarriage confirmed at 6wks4days





  • I just wanted to say I am sorry to hear about you and your fiancee. I was wondering if possible you could use a donor or were you specifically wanting your own biological children. If you are open to donors, there are alot of options out there, ex: such as sperm, egg, or embryo adoption if you wanted to carry the baby yourself. I truly hope a RE can help you and you will be able to genetically make it happen with you and your fiancee. Best wishes to you all and goodluck!!!!
  • I'm a CF spouse too.  We're using donor sperm after two failed IVFs.  We do know a number of CF males who've had luck with IVF.

    His CF doc hasn't talked to him about CBAVD?

    I'm sorry to be the bearer of this news, but he probably doesn't have any sperm in his semen due to that.  He probably has some in his testes, but it would have to be surgically removed and you'd need IVF.

    Have you been tested to see if you are a carrier?

     

    If you want to email me, mmbfred-wedding at yahoo dot com 

    Husband has cystic fibrosis. I'm a carrier. We did TESE, IVF, ICSI, and PGD. After two failed IVFs, we were blessed with our twins.

    Lilypie Premature Baby tickers
  • thank you so much it has been a long road for us already! 
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