I have lurked around on this board for some time and feel as if I have gotten some great information and resources from you all.
I'm feeling a bit lost and very defeated lately. My son (age 28 months--only child) is definitely different. He has not yet received a diagnosis although he is receiving several types of therapy. He has not seen the pediatrician since his 2 year checkup, and a brief once-over by the pedi led him to believe that he was "OK," just a little behind developmentally. I entered him into the EI program myself when he was 18 months. He currently receives speech therapy (once/month) and special instruction (twice/month). Just recently he has begun OT (twice/month) for sensory issues. During the EI visits, the therapists basically just play with him and encourage him to speak (what I do with him on a day-to-day basis). We have only had 2 OT visits so far but they have not given me very much information. He has spent time touching things with different textures, digging around in buckets of rice and beans, and playing with toys (while throwing a few tantrums of course).
I have seen a SLOW improvement with several things. He now has several words (maybe around 30?) and mimics funny sounds and can mimic intonation with several songs. There are maybe about 10 things that he can point to and say the name of (ex: apple).
However, his behavior is APPALLING. I get nervous to take him out in public because he throws so many fits. He's big for his age and strong...it's hard for me to constrain him most of the time because I'm very small. He will do the whole "go limp" tactic and fall out on the floor. It looks like I don't have any control over my child. There are times when he is sweet and loving, and there are times when he can turn into a super-terror. He was in MDO one morning/week in the spring, has had the summer off, and will start back at two mornings/week in September. I am so nervous that his behavior is going to be ridiculous.
I know some of this is normal 2 year old stuff, but I am getting anxious over getting a diagnosis. He is delayed verbally obviously, and based on his OT eval he has some different developmental delays. I feel like he will never catch up and I find myself getting more and more down about it every day.
I feel as if I'm talking myself in circles here. I don't know what exactly I wanted to post about, but wanted to put myself out there to some people who know where I'm coming from and who can offer support.
Should I be doing something more? Should I push for diagnosis? Who would be the one to finally tell me that he is on spectrum? I'm so scared for the future for my little boy.