Success after Prolactinoma (kind of long)

yeshuahamasshiah

I never realized this boards existed while DH and I were battling TTC. Anyhow, now that I found it, I thought i would write a short story about how it happened for us.

I was diagnosed with a Pituitary Macro-adenoma at age 15. Took Bromocriptine (Parlodel) for roughly two years. It really did not do anything for me other than make me nauseous sick and I lost about 20lbs while on it. My prolactine dropped from ~450 to ~400. My tumor actually grew from 2.1cm to 2.3cm during these years. My visual range remained clear however. Once in College, at 17 years of age I moved to a different city and began seeing a new OB. He recommended I switch to Cabergoline. I started with 1/4 tablet a week. My nauseousness was completely gone and I began to finally put on some weight (or maybe it was the freshman 30, who knows!). Fast forward 5 years and taking 1 pill a week (4 times my initial dose), my prolactine levels had dropped to ~150 and my tumor had shrunk to half its size, measuring at ~1.7cm. I continued taking the medication but still had not seen AF during all these years. Meanwhile I met DH, we got engaged and later married. We also started talking to the OB about wanting to conceive but my prolactine levels were still higher than normal and he said it would just take some time. However the medication would have a really weird effect on my libido. I was pretty much anti-sex. DH and I decided that I could be taking this pill for another 10 years or more and maybe TTC was not in the books for us.

Long story short, we adopted a beautiful baby boy and stopped TTC. We asked the OB to refer us to an Endocrinologists and we opted to stop taking the medication and if the tumor growth began to affect my visual range and obstruct my optic nerve we would consider surgical removal of the tumor. I still went into the OB every 4 weeks for a prolactine count and had an MRI scheduled for every 6 months. Needless to say my levels remained the same even off the medication but still no AF. Though inside my head there was still a battle I tried my very best to focus my energy on enjoying our son and maybe looking forward to a second adoption in the future.

Little did we know what life had planned for us. In December when I went in for my Prolactine count, it had gone up close to ~200. The OB suggested I go back on Cabegoline or we could be looking at a re-growth of my tumor and would have to seriously consider surgery. We decided we would wait a month, see how the prolactine progressed and make a decision then So, comes January and my prolactine is up to a whopping ~450. I also mentioned to the doctor that I had been experiencing sore breasts and leaking nipples. He suggested a pregnancy test. However after so many BFN over the years, this meant nothing. 10 seconds later, the nurse walks in .... it was a BFP!!!! It had to be a mistake, there was no way, I never saw AF, how could this be? The OB said to lay down that he would confirm the pregnancy with an U/S. Lo and behold, our LO was 8 weeks with a wonderful heartbeat and growing beautifully.

The overwhelming joy of knowing that I was and still am carrying a life inside on me is beyond my dreams. I never in a 1,000 lives imagined it to be true and I have been granted the most amazing gift this world has to offer. While many of you may have battled IF in a different way than mine, in the end we are all looking for the same outcome. We are lucky that we live in a medically advanced society and we have so many resources to help us get to where we want to go. I wish to all of you a less than stressful journey and I hope the very best for your future.

alison43

wow, what a story!!!

congratulations on your adoption and on your pregnancy--you are so blessed!! 

kittylove

Congrats! What a wonderful story, thank you so much for sharring. What wonderful gifts your children are, you are double blessed.

skoorbnibor

Your story is wonderful and I am happy for your adoption and surprise pregnancy!

However, I still side eye you for your mexican restaurant post... I hope you have calmed down over that ordeal!

yeshuahamasshiah

Thank you ladies. It truly has been a miracle come true.

skoorbnibor:

However, I still side eye you for your mexican restaurant post... I hope you have calmed down over that ordeal!

About that post. It really was meant to be a minor insignificant vent about a wrong order, typical restaurant occurrence. I misunderstood someone's quotation and overreacted about being called racist. Later I realized they had called some Arizona girl racist and not me. Of course it escalated from there on and the more I participated, the more aggravated I became.

In the end I made a fool of myself and I felt terrible about calling one particular lady out on her weight. I really had no excuse though the name calling towards me had been carried over to several other posts and it continued for a couple days.

I honestly never meant to be snarky or offensive and I tried to apologize with little to no luck, something no one did for me. I am completely over it and I learned that when in doubt it is best to keep my mouth shut. I am sorry if I offended you in any way. Thanks for taking the time to read my posts even after such event.

skoorbnibor

yeshuahamasshiah:

I felt terrible about calling one particular lady out on her weight. I really had no excuse though the name calling towards me had been carried over to several other posts and it continued for a couple days.

Ah, this is the internets, no worries. One day you are the statue, the next you are the bird.

 I knew you didn't make the racist comment!

But I hope you apologized to Raving Rabbids. She lost nearly 100 lbs through hard work and that is an accomplish one should never overlook!

SeaSoul

I LOVE your story - how miraculous!!  Congratulations and welcome to this board...you will fit right in.