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mono-mono twins...

Today I found out that I have become a very rare case (most doctors in the practice have never seen this) and there is a hole in the membrane between the amniotic sacs.  One baby has moved through the hole and into the other sacs - so, I am now carrying mono-mono twins.  I am looking for some positive stories or advice or anything anyone can tell me.  I do not want to google it, because I know that can be very risky.  Any information you can tell me about your mono-mono twins, would be very helpful.

 TIA

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Re: mono-mono twins...

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    Wow. How far a long are you? Did they pick this up on a routine u/s?

    I have no insight to offer, but wanted to say good luck and sending you lots of prayers. I know there have been a couple of mono-mono MoMs on this board, but can't think of any that are actively posting -- I hope one of the more 'veteran' ladies on here can point you in the right direction. 

    ETA: sorry, didn't see your ticker before I replied.  

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    imageMagPie08:

    Wow. How far a long are you? Did they pick this up on a routine u/s?

    I have no insight to offer, but wanted to say good luck and sending you lots of prayers. I know there have been a couple of mono-mono MoMs on this board, but can't think of any that are actively posting -- I hope one of the more 'veteran' ladies on here can point you in the right direction. 

    ETA: sorry, didn't see your ticker before I replied.  

    They think this was caused from one of the amnioreductions that I had.  Three weeks ago, my babies were diagnosed with TTTS.  They had to do 3 amnioreductions, and they think that is what caused it.  The good news is that this fixes the TTTS; the bad news is that we have to deal with all the risks of mono-mono

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    monoamniotic.org is a good resource, they have forums there. i assume you will be admitted soon for continuous monitoring?

    i'm sorry you're going through this. hugs!

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    I had mono/mono twin boys....mine were mono/mono from the begining.  I am no expert but I will give you my opinion based on the things I have learned from www.monoamniotic.org (totally rec this site).

    I went inpatient at 24 weeks and stayed in the hospital until my c-section.  I had 2 rounds of steroid shots and a round of magnesium the night before the c-section to help with the babies blood vessels.  I was put on the monitors 3 times a day and I had a BPP ultrasound 2 times a week. 

    I suggest going to the site above...but if you have more specific questions for me, just ask!

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