DS has had a hx of seizures( i actually posted below). He's been seizure free for a little over a year on Keppra. I was starting to breathe easier, and tonight he was really funky. Lethargic, zoning out, not hungry, threw up, some funny mouth movements... I could go on and on analyzing. He's exhausted from a long week, and he did have a slight fever, but it was a bit more than that as much as I try to rationalize it away. He's sleeping now and didn't have a full blown one, but I hate this at anytime something could happen feeling... dammit!
I know what you mean. I'm constantly watching LO...He's been seizure free since 10 days of age, after being on phenabarbitol for that amount of time, but there is a chance they can start again. It's a really scary feeling. Every little twitch makes my stomach drop.
I don't know if this will help you, but a nurse (a fantastic, amazing, super one) told me in the NICU that it might help to have a mantra of " I will not play what if". I thought it sounded hokey...but it actually works for me. As soon as I start to panic, I just shut my eyes, and repeat it over and over again to calm myself down.
I hope that your LO is ok Sending best wishes your way.
Re: need prayers
I know how you feel about analyzing every.little.thing. they do. I hope it's nothing. Let us know if you find anything out.
You've definitely got my seizure freedom prayers.
I know what you mean. I'm constantly watching LO...He's been seizure free since 10 days of age, after being on phenabarbitol for that amount of time, but there is a chance they can start again. It's a really scary feeling. Every little twitch makes my stomach drop.
I don't know if this will help you, but a nurse (a fantastic, amazing, super one) told me in the NICU that it might help to have a mantra of " I will not play what if". I thought it sounded hokey...but it actually works for me. As soon as I start to panic, I just shut my eyes, and repeat it over and over again to calm myself down.
I hope that your LO is ok Sending best wishes your way.