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Anyone with CAH/Adrenal Insufficiency?

SpceCadetSpceCadet
in High-Risk Pregnancy

I've been tentatively diagnosed with LOCAH/adrenal insufficiency.  My H and I are planning to start ttc in the next few months.  

Does anyone have  experience with this?

TTC #1 5/97 - PCOS dx 6/10 - Metformin 8/10 - Moved from Endo to RE 9/10 - 50mg Clomid 9/10 - 100mg Clomid 10/18 - BFP - Beta #1 = 91 - Beta #2 = 958 EDD 6/28/11 Tater Tot arrived 6/21/11 on his Great Grandmother's 90th Birthday
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Re: Anyone with CAH/Adrenal Insufficiency?

  • melissawillrmelissawillr member
    I have an adrenal insufficiency and have had the pregnancy from hell.  I take hydrocortisone three times a day.  But if it means anything, I still imagine me being pregnant once more in the future.  I'm really really looking forward to having this little boy.  Feel free to ask me any questions that may be relateable for you.  My hope is that you get pregnant and have an easy pregnancy!
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  • SpceCadetSpceCadet

    Thanks!  I'm feeling incredibly alone in the journey - CAH is pretty rare, and more rare is the form I likely have.  Even my endo has been doing research to see what's best and she said it's been almost 10 years since seeing someone with this.

    I was told at 18 that getting pregnant would be challenging and I think that's becoming more apparent now than it was then.  I'm hoping for an easy path too!  Thanks for responding.  I'm sure I'll have questions.

    TTC #1 5/97 - PCOS dx 6/10 - Metformin 8/10 - Moved from Endo to RE 9/10 - 50mg Clomid 9/10 - 100mg Clomid 10/18 - BFP - Beta #1 = 91 - Beta #2 = 958 EDD 6/28/11 Tater Tot arrived 6/21/11 on his Great Grandmother's 90th Birthday
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