T&P's please....

attyalice · March 2010

Ok, so the pediatrician called us this afternoon and told us that Harper failed the newborn screening for Cystic Fibrosis.... we are terrified.

I just got back from taking her to the children's hospital for further testing.

They have told us that sometimes the nurses get in a hurry and do the testing wrong. Thus, there is a significant level of false positives. Of course, this doesn't really help when I am here holding my precious little one worried that she has a long road ahead of her... and not knowing the answers.

It may take us 3 to 4 weeks to know the results of her tests.... but would you please say a prayer for her.... we are just so scared for her.... please give me some strength to not lose my mind with worry....

Rachel&Joe · March 2010

I just said a little prayer for your DD. Your pedi's words are comforting though. Hang in there--I can not imagine how terrified you must be but no matter what, these first few weeks with your baby only come once in a lifetime so try you very best to stay in the present--the tiny baby thing does not last very long! hugs

mrshutch · March 2010

Alice, I'm so, so sorry for this scare. But like the pedi said, mistakes can definitely be made. Sending lots of T&P your way and I'm sure Harper's going to be just fine

mrsandrews07 · March 2010

Oh sweet girl. I'm so sorry you are having to go through this. You can bet that I will be on my knees for Harper. I can only imagine how you guys are feeling. Just remember that the false positives are extremely high are I pray that she is part of that.

Did she get tested for that right after she was born? I haven't heard of that.

I'm not sure if you are a believer but know that fear is not from the Lord. I will be praying for peace for you guys. We have been going through a very stressful time with Kate since day 1 with her blood tumor. My fear is gone and I have been filled with an overwhelming peace...praying the same for you guys.

Looking forward to hearing the great results!!!!

erinkate23 · March 2010

Hugs, thoughts and prayers..... I'll be thinking of you guys.

Mrs. Diss · March 2010

I'm so sorry you're going through this. I hope everything is OK and you will all be in my thoughts.

popcorn13 · March 2010

Thinking of you and your LO and family. I'm so sorry you have to go through this but take comfort in what your doc said. I like the PP mention of staying in the moment. Take care sweetie.

saverne · March 2010

T&P coming your way. I hope you get positive news and the first results were just wrong. I am praying for you and your sweet little girl.

jen-dale · March 2010

Oh, Alice, I'm so sorry you have to worry about this. Lots and lots of T&Ps that harper is perfectly healthy and well. And then we're going to go kick some nurse hiney for scaring us all like that! (Hugs)

Danielleee · March 2010

Oh no! I'm so sorry you are going through this! Harper and you family is in my prayers tonight!

skibrook82 · March 2010

I'm so sorry! I can't even imagine, but my thoughts and prayers are with you and your family. I know it's going to be a very long 3 or 4 weeks, but just hang in there and hopefully your sweet girl will keep you distracted and you won't think about it!

shelbyluvschachi · March 2010

My LO also tested for the Cystic Fibrosis marker at birth. Her follow-up screening that they did at her two week appointment, however, came back negative. So, based on my experience, it sounds like there are many false positives from the first test. Hope it is the same for your sweet baby!

shelbyluvschachi · March 2010

Just to clarify, she tested positive on the first screening at birth, and then negative on the two week screening.

orleyl · March 2010

I know that must be so difficult to wait but hopefully it is a false positive, especially since that is common. My T&P are with you that Harper is good and healthy.

kellialayne · March 2010

I will say a prayer for you and Harper tonight.

DrDPM · March 2010

Did either you or Alex test positive as a CF carrier when they did your bloodwork way back at the beginning of your pregnancy? If not, I'd most definitely say it's a false positive. Try to stay calm and enjoy your perfect little girl - everything will work itself out. My thoughts are with you!

attyalice · March 2010

stacydelpop:
Did either you or Alex test positive as a CF carrier when they did your bloodwork way back at the beginning of your pregnancy? If not, I'd most definitely say it's a false positive. Try to stay calm and enjoy your perfect little girl - everything will work itself out. My thoughts are with you!

we didnt do the testing... i am kicking myself right now.... Crying

Vandy05 · March 2010

A prayer has been said for your sweet girl.

Lucky428 · March 2010

I'm praying it is a false positive... Your whole family is in my prayers.

Edit - it's late and I'm not sure I'm saying it right.. I'm praying the test is incorrect and your sweet baby girl is healthy.

DrDPM · March 2010

abartane:

stacydelpop:
Did either you or Alex test positive as a CF carrier when they did your bloodwork way back at the beginning of your pregnancy? If not, I'd most definitely say it's a false positive. Try to stay calm and enjoy your perfect little girl - everything will work itself out. My thoughts are with you!

we didnt do the testing... i am kicking myself right now....

Oh, sweetie, no kicking allowed. Would knowing any sooner make you love Harper any less? Would you have done anything different? No matter what the results, she's your beautiful, perfect little girl. And, if she happens to test positive for CF, then you and Alex will figure out the best game plan for her and go from there. She chose you to be her parents, and she wouldn't throw anything at you that you couldn't handle. Think positive!

Mskharis · March 2010

Praying for a false positive. I know its difficult not to worry, but I feel in my heart that your baby is going to be ok. Does your family have a history of CF? If not, I would be more inclined to say that the test was wrong and Harper is ok since its all genetic. Keep us posted.

luckyangel · April 2010

I will definitely keep you guys and your sweety in my prayers! She's really beautiful, BTW.

ibis · April 2010

I hope you get good news soon. Hang in there.

Babs022 · April 2010

baby harper is in my prayers. ((hugs))

mikkimikey · April 2010

You both are in my thoughts and prayers!!!

ceramsey · April 2010

You, Harper, and you DH are in my T&P's. I'm sure the next few weeks will be hard to wait through, but hang in there and love your little one-she is so adorable!

tiffanylaw06 · April 2010

Your family is in my prayers. I can't imagine the wait but just snuggle on your precious daughter and trust that things will be okay.

MrsPatterson · April 2010

You are in my thoughts and prayers, especially as we enter Easter weekend. I will pray that your dr. is right and that it's a false positive. Much love to you girl.

MelissaAB5579 · April 2010

Alice, I am praying for you and your sweet Harper. Your pedi's words are very comforting and like Rachel said try to stay calm & enjoy this tiny baby stage! We are here for you! ((((HUGS))))