Parenting

Update on Cayden

Thank you so much again for all of your thoughts and prayers.  I meant to update yesterday, but it was a very hectic day.  The good news is that the ENT that did Cayden's ear surgery finally got him into Children's yesterday. By this point, he was extremely weak and I could tell he was in a lot of pain.  The first thing they did was give him fluids, which he so desperately needed.  Then they looked at his ears.  It turns out that his body is resistant to antibiotics, which is what I was afraid of.  The infection started growing back immediately in his ears, so they were forced to go back in and drain the fluids from his ears.  At this point, the doctors decided to do it without general anesthesia because of how long it took him to wake up from it the last time.  He screamed bloody murder while they were doing it and the worst part was that I had to lay my entire body on top of him to help restrain him.  He was able to come home today and was taken off all forms of antibiotics until the doctors figure out what to do with his resistance.  My biggest fear is that I have no idea how they will treat any future illnesses.  His WBC count was elevated with all of the infection, but it went down a little today, which was a great sign.  I have gotten him to eat small bites of peaches.  He really still has no desire for drinking, but I am trying my hardest to keep him hydrated.  If his lips start becoming dry again, he will be admitted to the hospital again immediately.  He was 24 lbs and I believe he is now down to 19.5 lbs, which is a lot of weight to lose for a 13 mo old baby.  Through all of this, I have tried to be as strong as possible, but yesterday while driving, I just broke down.  I am so tired of my little guy being poked and prodded and seeing him in pain.  I have been guilty quite a few times of complaining to DH on how difficult of a baby he is compared to DD.  He normally is super active and literally never stops until bed time.  Last night while driving, I made a promise to myself that if God will just bring Cayden back to his normal self, I will never complain that he is too active again.  He will be monitored daily to check for more signs of infection, since currently there are no antibiotics that will work for him.  Please continue to keep him in your thoughts and prayers.  I think he is on the way to recovery from this illness.  I don't even want to think of what will happen when he gets sick in the future if his body has built up a resistance to medicine.  His cough still sounds horrible, but I'm hoping that it will clear itself.  To top it all off, DD came home sick from preschool today, so I'm having my mom watch her for the weekend.  I can't afford DS to be around anyone that is sick right now with his immune system being so low.  Again, I cannot thank you ladies enough for keeping Cayden in your thoughts. 

Re: Update on Cayden

  • I have been thinking about you and Cayden.  I'm glad that you were able to get some answers. I hope he continues to improve. Still praying for your family.
    Kelly, Mom to Noah 8.27.05 (born at 26 weeks)
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  • SO glad to hear he's doing better. Everyone's been thinking and asking about him since you last posted! Will keep thinking good thoughts for you and C...
    My babies!! Patrick Aydin, 9.24.07, and Alia Noor, 6.1.11 imageimage
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  • I've been waiting to see this. Thank god he is doing better! I cannot believe what you have been through!
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  • I'm glad he's doing better.  Sending my thoughts and prayers.
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  • I am so, so, so, so glad you updated.  I have been praying for you and Cayden.  I am sure that he is on his way to being 100% really soon. 

    ::hugs::

  • I am so sorry you're dealing with this.  I cannot imagine how scary and frustrating and exhausting this all has to be for you.  Please keep us updated. We're thinking of you and baby Cayden.
  • What a total nightmare:( I'm so sorry your poor, sweet baby is dealing with this. Cayden and your family are in my prayers. Get well soon, sweet boy.
    Evelyn-Mommy to Ben 9.20.05 and Emily 5.14.07 and Callie 7.10.09! Lilypie Kids Birthday tickersLilypie Fifth Birthday tickers Lilypie Second Birthday tickers
  • oh goodness. you poor things. that made me cry. i'm so sorry you're going through this. you shouldn't beat yourself up for how you felt about ds being different from dd as far as his being super active ... my dd is one of those kids and it's tiring. i'm glad you got some answers and hope he is back to his normal self soon. (((hugs)))
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  • Thank you for the update- I've been thinking about you.  That is just terrible what he- and you- have had to go through.  The antibiotic resistance is scary & I will pray for healing of this illness, and keeping him safe in the future. 
  • I am so glad to hear to that he is doing better and that they finally did something for him.  I hope he is back to his normal self very, very soon!

    ((hugs))

    DS1 10-06 and DS2 9-08 and baby #3 EDD 9-05-12
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  • (((HUGS))) and prayers
    Kill all my demons and my angels might die too. -Tennessee Williams

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    You take my ovaries, I take your yarns.
  • I'm so glad you came to update.  I've been thinking and praying for you and baby c all week.  I'm glad to hear that they are finally taking you seriously and he's getting the help he needs!
  • Thank you for updated us.  i'll continue to keep your little guy in my thoughts.  What a horrible situation.
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  • (((hugs)))  Keeping him in my thougths and prayers. 
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  • Praying for you and Cayden. I can not even imagine going through all that.

     

  • ((hugs)) 

    Thanks for updating.  I've been thinking about him.  More thoughts and prayers headed his way!

  • (((hugs))) I'm so glad they finally admitted him and he seems to be on the mend. You poor thing, and poor Cayden. I hope he's feeling better soon!
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    Alex (11/14/06) and Nate (5/25/10)
    "Want what you have, do what you can, be who you are." - Rev. Forrest Church
  • I didn't read your story before, but it sounds so scary!  I'm so sorry you guys are going through this.  (((((((((hugs)))))))))) and I hope he returns to his normal active self soon! 
    Madelyn 3/1/07 image, Lilypie 3rd Birthday Ticker Lilypie Maternity tickers
  • I've been thinking about your little guy -- I hope he continues to get better. I'm glad he got fluids.
  • I've thought about your family quite a bit since you posted your story. I am glad that things are looking up. I wish him a speedy recovery.
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  • I have been thinking about you. Glad they admitted him and I hope he is back to his normal self soon.
  • I hope he continues to get better.  Thinking of him and you.  I am sorry for everything that both of you have had to endure.  I have had moments where I have had to hold down Jack and the guilt is huge.  Just know that everything you are doing is for him to get better.  Try not to be so hard on yourself.  Thinking of you, Cayden and your family.
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  • I am so sorry you are having to go through this I will continue to pray for you and your family
  • I am just catching up on all of your posts. This is horrible and I can't believe you've had to go through all of this... poor baby, poor mama. Hope he's all better soon!
  • I'm so glad you updated. I've been so worried for little Cayden. I will continue to keep him in my thoughts and prayers and I hope that dd feels better, too.
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