Update to yesterdays fetal echo post.

juju

https://community.thenest.com/cs/ks/forums/thread/29727097.aspx

Well its not good this baby has a Ebstein's Anamoly 90% confirmed. We are scheduled to meet with Fetal Cardiology doc @ Columbia Pres on friday morning (first available apt) Hoping for a cancellation we would be there in a minute. The cardio believes the tummy is normal. 

  https://emedicine.medscape.com/article/154447-overview

So bring on the thoughts & prayers.

Thank you all your replies yesterday, even though i'm a lurker you guys make me feel loved.

Temp108743750006959

my t&ps are with you and your family. Don't lurk, post! we'll be here for you.

minnasmommy

good luck with everything! I've been thinking of you guys!!! at least you're in great hands at Columbia Pres.   keep us posted on your appt. 

Mrs.Tony

I am so sorry you got this news.  I read the overview - sounds very scary. Thoughts and prayers going your way. Please update us after the appointment.

A-baybride

I'm so sorry you didn't get better news yesterday - you're definitely in my thoughts and prayers.  I'm glad you were able to get an appt. at such a great facility so soon, and I hope they can help.  I have a friend with Tetralogy of Fallot who gets her care there and raves about the doctors.  Good luck.

buffalo_buckeye

Sorry you got bad news . You will be in my T&P. Sounds like you willbe getting the best care for your lo though. Gl!

amiamish

((((HUG))))

T&P's coming your way!

debs1018

I am sorry you got this news. Thoughts and prayers for you. You are in great hands at Columbia, that is where my son goes for his medical issues.

Yodajo

My t&P are with you!  Please keep us updated. 

Glendi2.0

Sending you lots of support during this time... I just peeked on the information about Ebstein's Anomaly, and it actually sounds similar to what my dad had- he was born with a bi-cuspid valve instead of it being tri-cuspid (not sure if it's exactly the same thing.) Anyway, he had a perfectly healthy life for a very long time, and he underwent a heart transplant about 10 years ago at the age of 54. He's in great health now. Modern medicine works miracles- remember that!!

jettagurl

Thoughts and Prayers to you, your baby, and your family. Please know we will be here to support your and the tough road you may have ahead.  Please keep us updated.  As a mom of CHD baby (DS1) who had open heart surgery, please let me know if there is any way I can help you.