I post on other boards, but just found out about this book (see link below). An acquaintance of mine knows the woman who wrote it, and though I've not read the book personally (or had a preemie), I think it's wonderful what she has done in memory of her son, who unfortunately passed away. The other link is an article about her. The article notes that all proceeds go to the March of Dimes.
https://www.columbian.com/news/2009/nov/30/a-window-into-neo-natal-intensive-care/