Anyone else have focal nodular hyperplasia (FNH)?

Kellie_Jason

It's benign masses on the liver, I was just diagnosed with it on Tuesday and they say it's the most common tumor for women in the childbearing age.  They are not going to do anything about it because they say it won't cause me any real problems, but they are watching it with CT scans to make sure it's not growing.  My questions are this:  I was told it was ok to keep taking birth control by my dr, however everything I read says the hormones could be feeding it so it's best to stop, also I'd like to have a second baby in the future and the dr says it's ok, but I'm just concerned about issues that could come up.  Has anyone been pregnant with FNH?  What did they do to watch it while you were pregnant?  Also since I was diagnosed I've been feeling weird pains where my liver would be and I know it's all in my head but I'm wondering if the "aches" that aren't really there ever go away, I don't even hold my DD on my right side anymore because I'm scared of doing something to my liver.  I don't feel right about having "masses" in me that aren't supposed to be there, will I ever forget about them being there?  I don't think this is really common but I was kind of hoping that someone here would have some experience with it.  TIA!

cmanmom

I have nothing helpful but we are very close.  I'm in Bellingham!  Crazy internet world   GL with the FNH