High-Risk Pregnancy

Devastating news...don't know what to do

Can't stand to even type it again - see link to blog below.  Feel like I am falling apart.  After all we went through last year, I never imagined more challenges.  Especially not completely different ones... 

https://krousehouse.blogspot.com/2009/12/so-god-gives-us-only-what-we-can-handle.html 

Re: Devastating news...don't know what to do

  • I can't even imagine your pain.  I am so very sorry.
  • I am so sorry.  I hope the outlook will improve, and you are in my thoughts!
    the bug & bee blog
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    anderson . september 2008
    vivian . february 2010
    mabel . august 2012
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  • I am so sorry.  I hope things start to get better soon.
  • I am so very sorry.  (((HUGS)))  T&P to you at this very difficult time.
  • I am so very sorry. You have handled more loss, pain and suffering than most will ever experience. I wish some people didn't have to be so strong all of the time. Praying you get the best possible news from the doctor.
  • I am so sorry...you, your DH and your LO are in my thoughts and prayers.  Have faith.
  • Oh my goodness, I am so sorry.  I can't even begin to imagine what you are going through. I have a very good friend whose first baby was diagnosed with severe SB, however they did go on to have a very healthy little boy after, and she is pregnant with another healthy baby.

    You are in my T&P.

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  • I can't imagine the hurt, pain, and sorrow you're dealing with. I'm so sorry you're going through this, again no less. 

    God (of whom ever you believe in) works in strange ways, and supposedly only gives you what you can handle as you said in your blog.  The reason may not be clear now but hopefully it will become clear sooner than later.  It doesn't make the pain go away, or lessen the blow at all. You and your family are in my thoughts and prayers.

    Stay strong, and post often to let us know how you're doing.  Even if it's just to vent. 

  • imagegrapeape73:

    Oh my goodness, I am so sorry.  I can't even begin to imagine what you are going through. I have a very good friend whose first baby was diagnosed with severe SB, however they did go on to have a very healthy little boy after, and she is pregnant with another healthy baby.

    You are in my T&P.

    If you check this again I have a question - how is the baby with SB?  Did they go on to have him?  Just curious...trying to see how others handle this. 

  • wow- there are no words! My thoughts and prayers are with you, your husband, and baby boy.
  • I'm sorry.  You definitely do not deserve more heartache.  I hope the doctors are able to give you some better answers.
  • My thoughts and prayers are with you and your family. I hope the outlook gets brighter for you and your LO.
  • So sorry to hear this. I am hoping the very best for you!
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  • My prayers are with you guys right now...hopefully further testing will prove that everything is perfect or not as severe as they are thinking!
  • my heart breaks for you and your husband. i completely understand all of your emotions, and i know there's is nothing anyone can say that will make it better. you have to find that on your own. i do pray that you turn to God and lean on Him. and remember, when you're at that point where you don't have the words to pray or even know what to pray for - He knows.
  • imageginleigh:
    imagegrapeape73:

    Oh my goodness, I am so sorry.  I can't even begin to imagine what you are going through. I have a very good friend whose first baby was diagnosed with severe SB, however they did go on to have a very healthy little boy after, and she is pregnant with another healthy baby.

    You are in my T&P.

    If you check this again I have a question - how is the baby with SB?  Did they go on to have him?  Just curious...trying to see how others handle this. 

    I actually hesitated telling you that.  In my friends case they did choose to terminate.  They saw no less than three separate doctors before coming to that devestating decision.  They are both deeply religious and it was truely torture for them.  They even flew to San Francisco to see another specialist for a fourth opinion, but his was the same.  With their baby he had the most severe form of SB.  One doctor even said it was the worst case he had ever seen.  His spine was completely open and there was evidence of fluid in and around his brain. 

    When they were ready to try again they saw a perinatologist and she took a higer dose of folic acid.  She was told that SB isn't genetic, and can't be caused by anything they had done or not done.  I pray that you get the answers you need quickly. 

    You and your family will continue to be in my prayers.

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  • I'm very sorry. I hope you get better news at your upcoming appointments. Sending you T&P.
  • imagegrapeape73:
    imageginleigh:
    imagegrapeape73:

    Oh my goodness, I am so sorry.  I can't even begin to imagine what you are going through. I have a very good friend whose first baby was diagnosed with severe SB, however they did go on to have a very healthy little boy after, and she is pregnant with another healthy baby.

    You are in my T&P.

    If you check this again I have a question - how is the baby with SB?  Did they go on to have him?  Just curious...trying to see how others handle this. 

    I actually hesitated telling you that.  In my friends case they did choose to terminate.  They saw no less than three separate doctors before coming to that devestating decision.  They are both deeply religious and it was truely torture for them.  They even flew to San Francisco to see another specialist for a fourth opinion, but his was the same.  With their baby he had the most severe form of SB.  One doctor even said it was the worst case he had ever seen.  His spine was completely open and there was evidence of fluid in and around his brain. 

    When they were ready to try again they saw a perinatologist and she took a higer dose of folic acid.  She was told that SB isn't genetic, and can't be caused by anything they had done or not done.  I pray that you get the answers you need quickly. 

    You and your family will continue to be in my prayers.

    I thought that might have been the case.  We are in a similar situation - the most severe form, fluid on the brain and the chiari malformation which also impacts the brain.  We are also quite religious, and if anyone had asked me last week if I would ever consider termination I would have said "no way".  I am now so conflicted.  I am also afraid my husband will not want to try again after two devastating losses.  Thanks for telling me, it helps to see what others have done.

  • Just read your blog and I am seriously aching for you and your husband.  My heart hurts for you both.  If I was in your situation, I'm not sure comforting words by strangers would help me a great deal, but I honestly will keep you in my prayers this week as you and your husband struggle with your decision.  God bless you. 
  • There really are no words that I could say that seem to be enough comfort.......my heart simply goes out to you and your husband.  May the Lord grant you strength and peace, along with the grace to deal with whatever lies ahead.  Please don't give up hope.......I truly am praying for a miracle for you and hope that the docs are able to give you better answers
  • imageginleigh:
    imagegrapeape73:
    imageginleigh:
    imagegrapeape73:

    Oh my goodness, I am so sorry.  I can't even begin to imagine what you are going through. I have a very good friend whose first baby was diagnosed with severe SB, however they did go on to have a very healthy little boy after, and she is pregnant with another healthy baby.

    You are in my T&P.

    If you check this again I have a question - how is the baby with SB?  Did they go on to have him?  Just curious...trying to see how others handle this. 

    I actually hesitated telling you that.  In my friends case they did choose to terminate.  They saw no less than three separate doctors before coming to that devestating decision.  They are both deeply religious and it was truely torture for them.  They even flew to San Francisco to see another specialist for a fourth opinion, but his was the same.  With their baby he had the most severe form of SB.  One doctor even said it was the worst case he had ever seen.  His spine was completely open and there was evidence of fluid in and around his brain. 

    When they were ready to try again they saw a perinatologist and she took a higer dose of folic acid.  She was told that SB isn't genetic, and can't be caused by anything they had done or not done.  I pray that you get the answers you need quickly. 

    You and your family will continue to be in my prayers.

    I thought that might have been the case.  We are in a similar situation - the most severe form, fluid on the brain and the chiari malformation which also impacts the brain.  We are also quite religious, and if anyone had asked me last week if I would ever consider termination I would have said "no way".  I am now so conflicted.  I am also afraid my husband will not want to try again after two devastating losses.  Thanks for telling me, it helps to see what others have done.

    We prayed and prayed with them about the decision,  and they were the same way about termination.  It ultimately came down to what  was best for the baby, not the parents. They didn't want him to suffer any more than he had.  No doctor could tell them that he wasn't in pain.  It really was horrible.  But they will even say that their faith is even stronger.  They did the entire grieving process, and we even had a small service and burial for him.  Only a small number of people know the exact circumstances surrounding him.  Most people just know that there were severe problems and the baby didn't live.

    We will continue to pray for you.

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  • I'm so very sorry you and your precious baby are in my T&P's. I too lost my first LO on 11/9/08 I could only imagine the feelings you are having worrying about this one. 
    Miscarriage/D&E 10w6d 10/3/14 (baby's heart stopped beating)

    Ectopic Pregnancy discovered @ 10 weeks 5/6/14 (Lost right tube and ovary)

    Baby Birthday Ticker Ticker


    Baby Birthday Ticker Ticker
     
    Miscarriage @ 9 weeks 11/9/08



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