Seizures and Daycare

Makinroom4baby

Backstory: Jayden had an EEG back ins Sept that came back with abnormal results. We were sent to a neurologist for further testing. The neurologist suggested that he hav an MRI and a repeat EEG b/c sometimes EEGs come back abnormal and not necessarily mean seizures. But since his first EEG was abnormal, the Dr still started Jayden on an anti seizure medication. The Dr said "At this point we have to treat the test, and then figure outthrough urther testing, how to exactly treat the patient." So at that point, we weren't sure if he was truly having seizures or not.

Well, Thursday (Thanksgiving) he had a seizure. He screamed in fear throughout the seizure and couldn't move any of his limbs. When he came out of the seizure he was extremely fatigued to the point of being nonresponsive. He couldn't talk or walk (the entire scary story is on my blog). We went to the ER where he was observed and the ER dr prescribed Jayden a rescue medication that we would have to give Jayden if he doesn't come out of a seizure within 5 minutes. This medication would need to go where ever Jayden goes.

For that reason, we had to take him out of MMO b/c their policy states that they will not give medication. We don;t want to take the risk there, so we took him out. However, we had plans on starting him at a preschool 3 days a week at the start of the New Year. I am not sure how that would work. Has anyone had any experience with this? The most common would probably be a child that has to have an epi pen with him everywhere he goes. How would a preschool handle that? Or would they? I plan to make some phone calls after we see the Dr on Wednesday, just to get an idea of what to expect.

femmegem

You just need to get a form signed by your doctor showing that he needs the medication, the dosage, when he would get it, etc. Absolutely they MUST be prepared to deal with situations like that.

Makinroom4baby

I had a feeling it would be something simple. I'm glad I asked prior to his appt on Wednesday! I'll request the letter then and add it to his huge medical files we have here at home.

minnasmommy

Oh Gosh!  you guys just can't seem to catch a break! 

I have no personal experience but my BFF's DD has SEVERE allergies, including severe food allergies and has to have an epi pen with her always. she is currently in pre-school and I know my BFF went to great lengths to make sure the school was ok with the facts and comfortable with giving her the epi pen if need be.

I hope you find a place where both you and the staff are comfortable with everything.

I also hope you get some answers soon! I'll be thinking of and praying for you! {{hugs}} 

femmegem

The daycare might have a form they want filled out, but you could always fax it to the pedi and they can fax it back to you or directly to the daycare. Or you can just stop by and hand them the form. They can sometimes fill it out while you wait. It's not something you need to be at an appt to get. Just FYI. I've had to do this with lots of meds- not as serious as Jayden's, but for Tylenol when he's teething, etc.

breezee_bean

I am sorry=(  Femme suggestion was along the same lines of what I was going to say.

buffalo_buckeye

I have a friend and her dd was just diagnosed with epilepsy. She said daycare has the meds (if the seizure goes longer than 45 minutes) that they have to administer. She said they were happy to do it, even as a suppository. Thankfully she hasn't had one at school yet but you never know. Gl. I'm sure it must have been scary to watch and not be able to stop it.

Andrewsgal

How old is he? Does he not qualify for a preschool program in your local public school? I would assume because of the speech delay he would. If so this would be a great option. My sister teaches in a program like this and has a lot of kids on various meds.

On the other hand my DD is in a preschool program and they will give meds. I would say it is equal to an epi-pen. I would train the director and direct teacher to give the medicine. It should be fine.

Makinroom4baby

Femme, we live 3 hours away from his neuro, so I would need to either get something Wednesday or have them to fax me something once I need it, LOL! Thanks for the info though. I didn't know they would even need a Drs note for Tylenol. Learn something new everyday.

 Buffalo, your friends DD's Dr says it's okay for the seizure to go on for 45 minutes? The ER Dr said that we had to give Jayden this medication (it's a suppository) after 5-7 minutes of a seizure. That after 30-45 minutes, it could cause significant damage. Maybe it's an age specific thing? I know Thursday, Jayden's seizure lasted all of 45-60 seconds and he could talk for an hour or so and couldn't walk for 3 hours. I can't imagine what a 45 minutes seizure would have done to my baby. 

Andrews, he does qualify due to his autism. However, they will only be seeing him one Tues and Thurs for 30 minutes a day. Practically nothing. He may get more once we move back to Louisiana.